Artwork for podcast The Axial Spondyloarthritis Podcast
Axial Spondyloarthritis - 10 Years On, The Lost Tribe
Episode 14415th May 2022 • The Axial Spondyloarthritis Podcast • Jayson Sacco
00:00:00 00:21:05

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This is an incredible abstract from 2020 out of the UK that looks at the time to diagnosis and how that 8-10 year timeframe for a diagnosis creates a whole group of people lost in medical limbo trying to figure out what is wrong with them. Here is a link to the abstract.

All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items.

Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies).

Here are some links to Amazon showing some of the items I discussed.

Uberlube -

Here is the Bean Bag neck warmer

Biofreeze -

Cane -

Heating Pad -

Weighted Blanket -

Steff Di Pardo's new book - I Am Not Invisible -

All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love