Imagine a World Where the Patient Owns Their Data
Episode 3622nd February 2021 • This Week Health: News • This Week Health
00:00:00 00:07:33

Transcripts

This transcription is provided by artificial intelligence. We believe in technology but understand that even the smartest robots can sometimes get speech recognition wrong.

  Today in health it we imagine a world where the patient owns their own data. My name is Bill Russell. I'm a former CIO for a 16 hospital system and creator of this week in Health IT a channel dedicated to keeping Health IT staff current and engaged. VMware was one of the first sponsors of this week in Health it, and now they're one of the first sponsors of Today in Health.

it. They've been committed to our mission of providing relevant content to health IT professionals since the start. They recently completed an executive study with MIT on the top, healthcare Trends, shaping it, resilience, covering how the pandemic drove unique transformation in healthcare. This is just one of the many resources they have for healthcare professionals.

For this, and several other great content pieces, check out vmware.com/go/healthcare on to today's story. This story comes from the USA Today. I search high and low for articles that might be irrelevance to this community. And this one comes from the USA Today Worldwide Web inventor, Tim Burners. Lee takes on Google, Facebook, Amazon to fix the internet.

sioned when he invented it in:

While it continues to be a place where people can interact in a free exchange of ideas, individuals and groups have lost their sense of empowerment to a handful of giant monopolies and countries that are bent on collecting their personal data. Once a platform becomes dominant, it is able to collect more information.

Said Peter Veered. Senior lecturer at the University of Westminster School of Media and Communication. That is what we are seeing around the world, and it explains why we have that. So-called G-A-F-A-M, Google, Facebook, apple, Amazon, and Microsoft in the us and the so-called Bat Baidu, Alibaba, and Tencent in China.

The next wave is about artificial intelligence. Companies and governments will use all that data to train algorithms to come up with better deep learning models. As President Vladimir Putin once said, the person who is in charge of artificial intelligence will dominate the world. But burners Lee and his business partner, John Bruce, have come up with an alternative to fight back against the consolidation of power.

They have launched a startup called Interrupt. Dot com that allows consumers, rather than companies to control their own data to store it in pods and to move it wherever they please. This means Facebook, Google, and any other big tech company will no longer be able to extract an individual's photos, comments, or purchase history without asking.

Seems logical. All of that will be stored on a pod, and an individual can share that information with a company if he or she chooses. We are on a mission to change the way the web works to make it a better place for all of us. At Burners Lee in a November YouTube video with Technology Intelligence Live.

It's a mid-course correction to restore the values of individual and group empowerment that the internet used to have and seems to have lost. This is the opposite way that apps are built. Burners, Lee said you don't have to hand your data over to them, and then it's locked away in that app forever with solid the individual.

Not a platform like Facebook controls the data. So far, the biggest deals. That Erupt has inked, have been with government entities and large corporations. It has a deal with the national health system in the United Kingdom to put health data into pods so that when someone shows up at the hospital, all their health history will show up with them.

As you know, with all these stories, I try to end with the, so what I, I think it's fascinating that it's the National health system in the uk. That is one of the first deals that they have signed. Uh, and this is basically what I'm advocating for with healthcare data. Exactly what the national health system in the UK is doing.

Patient owned pods that can be provided to the health system at the point of care. It can be provided to the American Cancer Society or Stanford to help in research. It can be provided to a tech company to help a, an individual, or a patient to stay healthy. The transfer of information is not permanent and is always, always, always in control.

By the patient. I find that most leaders in health systems agree with me in concept, but act in a different fashion. You'll hear your words like We believe that the patient record is owned by the patient. However, they will aggregate the data, resell the data, and use the data as they wish without ever letting the patient know where their data is going.

I'm just saying that I'd like to see that change. I believe 90% of patients agree with me and not only . Patients in general, but patients who actually work for health systems agree with me if only they knew how to organize around the privacy concept. Going back to where we started, we said first we're going to explore the concept and we did it's pods, pods of information that handle the patient data, and that is a place where I own the data and I share it with other entities.

Which could be health systems, can be tech, can be research. Then it's the application to healthcare and the application is what the national health system has done in the United Kingdom. And that is take the patient record, put it in a pod, give it to the patient and say. Get engaged in your health, get it out there, and then we're going to ask what this might mean for the local health system.

I think this is a phenomenal movement for any local health system to take on, and the reason I think that is because this is where we can lead. We are leading in so many different ways, but right now what I'm seeing happen is. A lot of health systems are forming these conglomerates to bring information together so that they can compete with the larger tech companies that are coming into this space.

With the Amazons, with the CVSs and the Aetnas, people are starting to compete on the patient's data. I'd like to see somebody lead and go in the other direction, and that is form a conglomerate of hospitals that essentially agree with this concept and buy into providing the patient all their data in a pod so that they can move around with it, provide it at the point of care, and build a true longitudinal patient record at the patient, the patient as the locus of information.

Just something to consider as we begin our week. Healthcare. That's all for today. If you know of someone that might benefit from our channel, please forward them a note. They can subscribe on our website this week, health.com, or wherever you listen to podcasts. Apple, Google Overcast, Spotify, Stitcher, you get the picture.

We're everywhere. We wanna thank our channel sponsors who are investing in our mission to develop the next generation of health leaders. VMware Hillrom, Starbridge Advisors, McAfee and Aruba Networks. Thanks for listening. That's all for now.

Chapters

Video

More from YouTube