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More Than My Diagnosis Living Beyond Cystic Fibrosis with Nicholas Kelly
🗣️ Conversations That Heal (Guest Episodes) Episode 8323rd June 2026 • Surviving Me • Dai
00:00:00 00:47:15

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What happens when survival becomes part of your identity before you're even old enough to understand what it means?

In this powerful episode, host Dai sits down with Nicholas Kelly — a 39-year-old man living with cystic fibrosis, registered dietitian, and advocate — who has spent his entire life navigating chronic illness, uncertainty, and the complex journey of building a meaningful life beyond a diagnosis.

Nick opens up about being diagnosed as an infant (in a story that starts with his mother's incredible tenacity), undergoing open heart surgery at age 5, and how his parents shielded him from fear while quietly carrying the weight of his illness themselves. From growing up with CF as "just an extra step" in his morning routine, to becoming a clinician who helps others reclaim agency in their own lives, Nick's story is one of resilience, purpose, and transformation.

In this conversation, we explore:

  • Growing up with chronic illness and what people often misunderstand
  • Navigating identity when survival is baked into your story from birth
  • Redefining success and what it means to truly thrive
  • Turning personal loss into a stepping stone toward legacy and healing
  • What it really looks like to build a life beyond survival mode

Whether you're living with a chronic condition, supporting someone who is, or simply navigating your own version of uncertainty — this episode is for you.

Connect with Nick: Website: nicholaskellyrd.com

Socials: @nicholaskellyrd

Email: [email protected]

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