Around 10,800 people in the UK have Cystic Fibrosis, which is 1 in every 2,500 babies born.

Cystic Fibrosis affects around 100,000 people in the world. 

• Jess is a Norland Nanny who nannied for 12 years before setting off as a blogger on a travelling adventure - little did she know at the time what she would face once her precious baby was born and they received the results of the newborn heel prick test. 
• Jess talks to us about how it felt to receive the news that her baby Ottilie had Cystic Fibrosis. 
• She explains what this meant, from diagnosis to medication, the CF team, support for CF families and life with CF at home.  

(We recorded this podcast with Jess in March – now it is August, the weather has certainly got better!) 

Links:  Instagram - @bespokefamily / Facebook - @bespokefamily  @thelittledreameruk @cftrustuk 

Cystic Fibrosis Trust  

Our blogs: Read them here 

Bespoke Family 1:1 Parent Consultations: https://www.bespokefamily.co.uk/parent-consultations  

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