Join us for another episode of the ISTAART Relay Podcast from Dementia Research. This time Dr Ece Bayram moves from interviewee to interviewer and chats with Dr Diana Karamacoska, the vice chair of the Partnering with Research Participants PIA.
This episode explores the challenges and breakthroughs in dementia research, with a special focus on engaging underserved communities, and public involvement. Dr Karamacoska shares her personal journey inspired by her grandparents' experiences with dementia, highlighting the gaps in services and the importance of culturally appropriate care.
Discover how the ISTAART PIAs are transforming dementia research through meaningful partnerships and inclusive practices. Learn about the global shift towards collaboration with research participants and the innovative approaches being used to address disparities in dementia care. Diana also discusses the significance of maintaining well-being while working closely with affected communities and the role of the PIA in supporting researchers.
Tune in to explore the latest trends, including the exciting initiatives planned for the upcoming Alzheimer's Association International Conference (AAIC) in Philadelphia, and understand why the Partnering with Research Participants PIA is unique in its dedication to patient and public involvement.
A transcript of this show, links and show notes and profile on all our guests are available on our website at https://www.dementiaresearcher.nihr.ac.uk.
If you prefer to watch rather than listen, you will find a video version of this podcast on YouTube, on our website, and in selected podcast platforms.
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We gratefully acknowledge the support of our funders: Alzheimer’s Association, Race Against Dementia, Alzheimer’s Research UK, Alzheimer’s Society, and the National Institute for Health and Care Research.
The views and opinions expressed by guests in this podcast are their own and do not necessarily reflect those of the producers, funders, or sponsors.
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