This episode is an important conversation about the physical signs of dementia that families often miss. Dementia is diagnosed when cognitive changes begin to interfere with daily function , and recognizing early warning signs can make a meaningful difference.
In this episode, we discuss:
We also highlight why early detection matters. A timely diagnosis allows families to explore treatment options, plan ahead, and make important care decisions while their loved one can still participate . Providing practical education and compassionate guidance for caregivers and families.
Have a look at our updated website - https://www.mindingdementiasummit.com/
About the Host:
Author Lisa Skinner is a behavioral specialist with expertise in Alzheimer’s disease and related dementia. In her 30+year career working with family members and caregivers, Lisa has taught them how to successfully navigate the many challenges that accompany this heartbreaking disease. Lisa is both a Certified Dementia Practitioner and is also a certified dementia care trainer through the Alzheimer’s Association. She also holds a degree in Human Behavior.
Her latest book, “Truth, Lies & Alzheimer’s – Its Secret Faces” continues Lisa’s quest of working with dementia-related illnesses and teaching families and caregivers how to better understand the daunting challenges of brain disease. Her #1 Best-seller book “Not All Who Wander Need Be Lost,” was written at their urging. As someone who has had eight family members diagnosed with dementia, Lisa Skinner has found her calling in helping others through the struggle so they can have a better-quality relationship with their loved ones through education and through her workshops on counter-intuitive solutions and tools to help people effectively manage the symptoms of brain disease. Lisa Skinner has appeared on many national and regional media broadcasts. Lisa helps explain behaviors caused by dementia, encourages those who feel burdened, and gives practical advice for how to respond.
So many people today are heavily impacted by Alzheimer's disease and related dementia. The Alzheimer's Association and the World Health Organization have projected that the number of people who will develop Alzheimer's disease by the year 2050 worldwide will triple if a treatment or cure is not found. Society is not prepared to care for the projected increase of people who will develop this devastating disease. In her 30 years of working with family members and caregivers who suffer from dementia, Lisa has recognized how little people really understand the complexities of what living with this disease is really like. For Lisa, it starts with knowledge, education, and training.
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Welcome back everybody to the truth lies and
Lisa Skinner:Alzheimer's show. I'm Lisa Skinner, your host, and I bet
Lisa Skinner:that a lot of you out there are not even aware that there are
Lisa Skinner:common physical signs of dementia. So this is what I'm
Lisa Skinner:sharing with you today, because I want you to be aware that
Lisa Skinner:there are physical signs of dementia in addition to
Lisa Skinner:cognitive symptoms, science behaviors, etc, etc. So I
Lisa Skinner:thought this would be a really fun thing to share, because I
Lisa Skinner:know a lot of people are not aware that sometimes people
Lisa Skinner:suffer from physical imperities as well as cognitive
Lisa Skinner:imperatives. So this comes from an article written in Huffington
Lisa Skinner:Post, life, getting older comes with many changes. We all know
Lisa Skinner:that right, unfortunately, not the least of which are
Lisa Skinner:occasional memory lapses, which tend to worry many people in the
Lisa Skinner:moment. This is true, these cognitive changes can be totally
Lisa Skinner:normal, so there is no need to panic. If you occasionally
Lisa Skinner:forget that the your sunglasses are on top of your head, or you
Lisa Skinner:forget the name of your son's former teacher. We call this
Lisa Skinner:normal aging forgetfulness, and we've done episodes on that
Lisa Skinner:before, but there is a clear difference between age related
Lisa Skinner:cognitive changes and full blown dementia. Now, if you remember,
Lisa Skinner:roughly 7 million people in America are living with
Lisa Skinner:Alzheimer's disease and related dementia, and it's expected that
Lisa Skinner:the number is going to nearly triple by the year 2050 and if
Lisa Skinner:we do the math on that, that's only 24 short years away, and
Lisa Skinner:that's according To The World Health Organization and the
Lisa Skinner:Alzheimer's Association, experts are telling us that cognitive
Lisa Skinner:impairment becomes something more severe at a certain point,
Lisa Skinner:the magic line that transitions someone from mild cognitive
Lisa Skinner:impairment to dementia is when one of their cognitive
Lisa Skinner:impairments is impairing their function ability, so it's
Lisa Skinner:impacting their day to day lives. For me, that is one of
Lisa Skinner:the key parts of defining when someone has transitioned to
Lisa Skinner:dementia, and that's a quote by Dr Stephanie nussel, who's a
Lisa Skinner:geriatrician and an associate professor at Johns Hopkins
Lisa Skinner:School of Medicine in Baltimore, Maryland. This could mean no
Lisa Skinner:longer being able to use a car, for example, getting lost while
Lisa Skinner:driving a familiar route or not being able to do one's taxes
Lisa Skinner:after decades of doing them. And this is another quote by Dr
Lisa Skinner:Nobel, if cognitive changes make it tough to get through a normal
Lisa Skinner:day. She says, that's a red flag, just to kind of reiterate,
Lisa Skinner:dementia is used as an umbrella term that describes multiple
Lisa Skinner:forms of cognitive impairment, including Alzheimer's disease,
Lisa Skinner:which is the most common form of dementia, there are over 100
Lisa Skinner:known brain diseases that cause similar symptoms that we put in
Lisa Skinner:The category of dementia, like vascular dementia and
Lisa Skinner:Parkinson's disease. The exact manifestations of the disease
Lisa Skinner:depend on the actual diagnosis, and while cognitive impairment
Lisa Skinner:is common thread, there are also some physical symptoms that tend
Lisa Skinner:to be associated with dementia. So here's what they are. The
Lisa Skinner:first one is if you notice trouble walking and balancing,
Lisa Skinner:and Dr nathel tells us that she finds that a lot of the more
Lisa Skinner:physical manifestations happen later in the course. Course of
Lisa Skinner:dementia, but there is a physical issue that occurs
Lisa Skinner:earlier on and gets worse throughout the course of the
Lisa Skinner:disease, and that's somebody's ability to walk and maintain
Lisa Skinner:their balance. She continues the ability to maintain your balance
Lisa Skinner:and walk smoothly. Actually, it requires a lot of brain power. I
Lisa Skinner:find this really fascinating. It requires a lot of brain power
Lisa Skinner:because you have to process a lot of different inputs. You
Lisa Skinner:have to process sensations from your feet. You have to process
Lisa Skinner:what your eyes are seeing in the environment around you, and
Lisa Skinner:more, you have to quickly react to these things. And so it's a
Lisa Skinner:very strong cognitive task, to be able to walk because of all
Lisa Skinner:this trouble walking, trouble balancing and falling
Lisa Skinner:frequently, is a sign of dementia. But note that these
Lisa Skinner:issues aren't only a sign of the disease. They can be due to
Lisa Skinner:having arthritis or even your own clumsiness. Number two is
Lisa Skinner:posture changes and feet shuffling. That actually is a
Lisa Skinner:very common sign of dementia. The second most common form of
Lisa Skinner:dementia is Lewy body dementia, and this is according to Dr Jory
Lisa Skinner:Fleischer, who's an associate professor of neurological
Lisa Skinner:Sciences at Rush University in Chicago, this describes a few
Lisa Skinner:types of dementia, including Parkinson's disease. We see this
Lisa Skinner:a lot in people living with Parkinson's disease is that
Lisa Skinner:shuffling effect. In this manifestation, you may notice
Lisa Skinner:posture changes, also feet shuffling, or that someone is
Lisa Skinner:walking slower than they used to. Dr Fleischer said, while
Lisa Skinner:it's easier to chalk these issues up to getting older, not
Lisa Skinner:paying attention having arthritis, and if we're seeing a
Lisa Skinner:pattern of that, we want to pay attention to it. She added
Lisa Skinner:number three, is having changes in your sense of taste and
Lisa Skinner:smell. I have read some updated information, oh, probably the
Lisa Skinner:last few months. And I shared this with you all on one of the
Lisa Skinner:episodes that it's coming out that a lot of people who have
Lisa Skinner:been diagnosed with Alzheimer's, slash dementia, one of the early
Lisa Skinner:symptoms that they noticed that they didn't think about at the
Lisa Skinner:time was a change in their sense of taste and smell. Well, here
Lisa Skinner:it is, a change in your sense of taste or smell can be attributed
Lisa Skinner:to many issues, such as a covid, 19 infection, or a history of
Lisa Skinner:sinus problems, but outside of known factors, unexplained
Lisa Skinner:changes in these senses can also be related to dementia. Dr
Lisa Skinner:Fleischer explains, sometimes the person doesn't notice it
Lisa Skinner:themselves, but their loved one is going, hey, something on the
Lisa Skinner:stove was burning and you didn't smell that. That's an example.
Lisa Skinner:This is a symptom that should push someone to see their
Lisa Skinner:physician. While it may not be a sign of all forms of dementia,
Lisa Skinner:it is definitely associated with Lewy body dementia, according to
Lisa Skinner:Dr Fleischer,
Lisa Skinner:number four is having problems swallowing. People with dementia
Lisa Skinner:may also experience trouble swallowing food and drinks. So
Lisa Skinner:what Dr nafell tells us is that people can be eating or
Lisa Skinner:drinking, and things will have a tendency to accidentally go down
Lisa Skinner:the wrong pipe. In other words, the food actually ends up going
Lisa Skinner:into our lungs versus going into our stomachs, and that is not
Lisa Skinner:supposed to happen. Now, saliva helps us swallow food and
Lisa Skinner:drinks, and our mouths are full of bacteria. She said, while
Lisa Skinner:some of the bacteria is good bacteria, some of it is not so
Lisa Skinner:good. Um. Um, like bacteria that comes from cavities in our mouth
Lisa Skinner:and gum disease. And if that bad bacteria ends up in your lungs
Lisa Skinner:with your food, it can set you up for infection. We call that
Lisa Skinner:aspiration pneumonia, and that is the very reason why pneumonia
Lisa Skinner:is relatively common in the latter part of dementia, says Dr
Lisa Skinner:Neufeld, and I can tell you from personal experience that it is
Lisa Skinner:also one of the most common means of end of life for people
Lisa Skinner:living with dementia. I want to tell you that my mother passed
Lisa Skinner:away from aspiration pneumonia. She kept she had a feeding tube.
Lisa Skinner:She couldn't swallow at all, and even though she had a feeding
Lisa Skinner:tube, and we fed her formula through that feeding tube that
Lisa Skinner:was attached directly to her stomach, just from her
Lisa Skinner:swallowing her own saliva. It went into her lungs, and the
Lisa Skinner:bacteria became infected, and the doctor told us that the more
Lisa Skinner:she developed aspiration pneumonia, the more resistant it
Lisa Skinner:would come become to antibiotics. And eventually the
Lisa Skinner:antibiotics would become 100% resistant to the bacterial
Lisa Skinner:infection that developed in the lungs, and there would be, you
Lisa Skinner:know, no recourse. And sadly, that's exactly what happened the
Lisa Skinner:last time she developed aspiration pneumonia. That was
Lisa Skinner:it so. But, you know, it's, it's funny, she did not have
Lisa Skinner:dementia. She was like, perfectly sound. What she had
Lisa Skinner:had was multiple, multiple strokes, and that was the reason
Lisa Skinner:why she no longer was able to swallow anything. So number five
Lisa Skinner:is having bladder control issues or incontinence, which it's also
Lisa Skinner:known as and unfortunately, can be a symptom of dementia. Now,
Lisa Skinner:the explanation for that is that a lot of nerves are required for
Lisa Skinner:bladder control, and those nerves degenerate as dementia
Lisa Skinner:progresses. Similarly, folks may experience new constipation
Lisa Skinner:later in life, according to Dr Fleischer, which can also be a
Lisa Skinner:sign of Parkinson's and other related conditions and often
Lisa Skinner:precedes the other symptoms by years, And number six is sleep
Lisa Skinner:changes. So according to Dr Fleischer, sleep changes are
Lisa Skinner:also important to look out for in people living with dementia.
Lisa Skinner:The person experiencing sleep changes may not notice, but if
Lisa Skinner:you live with someone and find they're moving around a lot at
Lisa Skinner:night, punching at things, shouting or talking in their
Lisa Skinner:sleep. It's very important to let their health care team know
Lisa Skinner:that may be something called R, E, M behavior disorder, which
Lisa Skinner:often can come years before a person has Parkinson's or Lewy
Lisa Skinner:body dementia, she adds, and I'm going to continue with an early
Lisa Skinner:diagnosis can be a powerful way to prepare for the future. It
Lisa Skinner:can certainly be hard to admit to any health problems or
Lisa Skinner:changes, especially when it comes to cognition, but it's
Lisa Skinner:important that we do so we are living in a time of innovation
Lisa Skinner:when it comes to dementia treatments, and this is
Lisa Skinner:something that Dr Fleischer is emphasizing to all of us.
Lisa Skinner:There's lots of different research going on right now to
Lisa Skinner:try to find treatments and pharmaceutical options for
Lisa Skinner:people. Doctors can check biomarkers in blood and or
Lisa Skinner:spinal fluid to determine what kind of dementia someone has,
Lisa Skinner:and then be able to make treatment recommendations and
Lisa Skinner:decisions based on that. So no matter what, it's best to start
Lisa Skinner:treatments or interventions the earlier the as possible, as
Lisa Skinner:early as possible on the course of these diseases. Now that is
Lisa Skinner:something that. But both Dr nathel and Dr Fleischer want
Lisa Skinner:everybody to be clear about the treatments now are not a cure,
Lisa Skinner:but we know now that they can help with disease management and
Lisa Skinner:early diagnosis can also help families and individuals best
Lisa Skinner:prepare for the progression of this lung disease. They say
Lisa Skinner:finding out early on can be really helpful for a lot of
Lisa Skinner:different reasons, including planning and just having a say
Lisa Skinner:in a person's future. If you find out early, you often can
Lisa Skinner:still make some decisions, whether that's your care,
Lisa Skinner:whether you'll live where I'm sorry, where you'll live, and
Lisa Skinner:also on your financial choices. And this all makes it important
Lisa Skinner:to pay attention to any signs of dementia, either in yourself or
Lisa Skinner:noticing it in a loved one, and then reach out to a physician if
Lisa Skinner:you notice concerning changes it is starting to impact Your daily
Lisa Skinner:living habits. So as scary as we know that this is a diagnosis,
Lisa Skinner:and knowledge in early detection gives you power, according to Dr
Lisa Skinner:Fleischer, and I agree with that statement 100% so whether you
Lisa Skinner:have any of the symptoms above or not, there are things you can
Lisa Skinner:do to reduce your dementia risk or slow down the disease
Lisa Skinner:prevention. These include all of the things that go into a
Lisa Skinner:healthy lifestyle. Both experts recommend that to lower your
Lisa Skinner:chance of dementia, it's helpful to follow a nutritious diet.
Lisa Skinner:Both these doctors recommend the mind diet that's m, I n, d, to
Lisa Skinner:exercise, to socialize with loved ones and manage chronic
Lisa Skinner:conditions like diabetes and sleep apnea experts predict that
Lisa Skinner:42% of Americans over 55 will develop dementia in their
Lisa Skinner:lifetime. But there are things we now know you can do to
Lisa Skinner:prepare for the disease if you get a diagnosis, and things you
Lisa Skinner:can do to help minimize and even lower your risk. So that is the
Lisa Skinner:episode today for the truth lies in Alzheimer's show. I'm Lisa
Lisa Skinner:Skinner, your host, as always, I will be back next week with a
Lisa Skinner:brand new episode for you, and the citation for the information
Lisa Skinner:I presented to you today will be in the show notes for you if you
Lisa Skinner:want to refer to it. And as always, I hope you all have a
Lisa Skinner:fantastic rest of your week that you stay happy and healthy and
Lisa Skinner:until then. Au revoir for now.