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Why Heart Patients Must Monitor Symptoms and Be ER Ready: Critical Insights
Episode 663rd September 2024 • Open Heart Surgery with Boots • Boots Knighton
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Hey Heart Buddies! Oooooo today's episode is another episode I needed when I was starting my heart journey. I interview Jennifer Johnson, an ER nurse, who dishes on all the things our doctors aren't going to tell us heart patients... at least I haven't had one tell me all that Jenn shares in this episode. She emphasizes the importance of being proactive about health, grieving, and understanding women's unique heart attack symptoms. The discussion covers practical tips for heart patients, including keeping a detailed symptom journal, bringing medication lists to the ER, and financial assistance for medications. They highlight the significance of humor, intuition, and having an advocate in healthcare settings. The episode underscores the value of early intervention and proactive care to prevent severe cardiac events and complications. Subscribe to join the supportive heart patient community on Patreon.

Find Jenn's books here

30 Days: A Symptom Tracker for Heart Patients: Johnson RN, Jennifer A: Amazon.com: Books

TheIntuitiveNurse - Etsy Canada

About Jennifer Johnson

Hi, I’m Jennifer Johnson, and I am a wife, mother of two, and a Registered Nurse in Ontario, Canada. I have spent the last sixteen years of my career in the emergency room of big and small hospitals all over Northern and Southern Ontario. I have personally been a part of all the heartbreak, drama, bullying, life to death moments, and then also trying to cope in the ER during an ongoing pandemic. My books are my rally cry to all the other nurses struggling through this pandemic and finding that they are losing their love of nursing. They (as well as I) are burnt out and depressed and feeling hopeless. The love, caring, and camaraderie of nursing have changed for all of us, and the expectation that we continue to show up to a job that puts our lives on the line is new to us, and we are not doing well. I wanted to put this book out there to let nurses know they are not alone. Bringing back the love of nursing is possible. Now more than ever, we need to support and help raise each other.

Join the Newsletter for almost weekly content for this podcast and other heart related news.

Join the Patreon Community! The Joyful Beat zoom group is where you'll find connection and hope that you aren't alone in your journey.

If you just want to support the show as a one-time gift (thank you), go here.

**I am not a doctor and this is not medical advice. Be sure to check in with your care team about all the next right steps for you and your heart.**

How to connect with Boots

Email: Boots@theheartchamberpodcast.com

Instagram: @openheartsurgerywithboots or @boots.knighton

LinkedIn: linkedin.com/in/boots-knighton

Boots Knighton

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Open Heart Surgery with Boots

Transcripts

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Women have heart attacks that are so much different than men's.

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It's not typically your classic, you know, clutching the chest, the

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left arm, the jaw pain, the back pain. Like

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it's not usually those signs.

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Welcome to open heart surgery with Boots. The

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podcast that gets to the heart. Of what it's really

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like to go under the knife. I am your host,

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Boots Knighton, here to share the ups,

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downs and everything in between about

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heart surgery from the patient's perspective.

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Before we dive into this operating room of our

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shared experiences, please make sure this

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podcast stays on the healthy side of the

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charts. If you're finding this podcast helpful or

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inspiring, please subscribe and leave a

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review. Your support is the heartbeat

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that keeps the show alive. And

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if you want to be a part of an even closer knit

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community, come on over to our Patreon.

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Join us in the heart chamber. You can

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find

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us@www.patreon.com

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openheart surgery with Boots. There you'll get

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exclusive content, behind the scenes stories, and

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a chance to connect with other heart warriors.

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But for now, let's open up and explore the world

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of heart surgery from the other side of the

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scalpel. Thanks for coming back

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to another episode of Open Heart Surgery with Boots.

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I am your host, Boots Knighton, and today I get to

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introduce you to another canadian friend of

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mine. I am losing track now of all the wonderful

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Canadians I've been able to invite onto the podcast. I love

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y'all. Please keep coming back. And today is a

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super special guest from Ontario, Canada,

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Jennifer Johnson. Wow, she has so much

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to teach us. Jennifer is an

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emergency room nurse and she has

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spent the last 16 years of her career

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in the ER, in big and small hospitals

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all over northern and southern Ontario. So she's seen

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a lot. She has personally been part of all the heartbreak, the

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drama, bullying. She's got to tell us about that

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life and death moments and then also trying to cope in the

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ER during the ongoing pandemic.

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She has since written a book about how nurses

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are struggling through the post pandemic era

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and burnout and she is just an absolute

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treasure. She is starting to teach folks about how to use

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their intuition in nursing and she's going to tell us about

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that as well. And then ultimately she is going to

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coach us heart patients on how to show up

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to the ER, prepared, what to expect in the

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ER, and how to help nurses help us.

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So Jen, thank you so much for saying yes to today

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and welcome to the podcast. Thank you so much for having me.

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I'm so pumped. It's gonna be. And I hope I said all

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that right. Like, you, you're doing so many great things.

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And I've experienced from the heart patient's

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perspective, I have experienced burned out nurses since the

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pandemic. And I thank them. And I thank you

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for continuing to serve because we

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need. We heart patients need all the help we can get.

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I'm sorry in advance for the burnt out nurses.

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They. They know not what they do or how they come

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across. And I'm sorry. Typical

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canadian fashion. I'm so sorry. And an

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accent. My gosh, I love

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it. I love it. I may put it on a little bit more and

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I may pick up yours just for fun. I don't show.

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That's the great thing about podcasts is around the

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world, we are listened to, and I get to hear so many

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different accents. So set the scene for us

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and your nursing career and the

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book you wrote and your intuition, like, give us the

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down low so we can understand who you are before we dive in.

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Into the emergency room scene. Absolutely. So I'm

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Jen. I'm based out of Hamilton, Ontario. I've

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been nursing for 16 years now and continue

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to nurse at the bedside in a few different

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ers. And it's just one of those things

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where even if you try to leave the ER, if you're

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drawn to it, if you're a lifer, you can't quite get away.

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So no matter how hard I try to kind of try other things,

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I always end up going back to the ER. So it's been, yeah,

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16 years of highs and lows and. And super

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lows with COVID and, you know, it's one of those things where you

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look back and you're like, how has it already been 16 years?

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Cause it feels like it's. It's gone by in an instant. It's

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absolutely hilarious to kind of take a step back and go like,

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okay, well, I guess I'm the senior nurse. When somebody calls out, we need a

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senior nurse, and you're like, who's going to be it? It's like, oh,

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I'm the senior nurse. Like, okay, I guess I can fill that

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role for you. So just kind of, you know, going through the

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motions and going through, you know, pretty wicked depression

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with COVID Ended up kind of hitting all

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sorts of rock bottoms that, you know, you didn't even know were possible

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until you hit them. And through that, I ended

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up just kind of writing into a book, a bunch of

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experiences for my kids because we thought we were going

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to not make it home some days. And so it was one of

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those things where it's like, okay, well, if I end up passing, and

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this is the end of my career, this is the end of my life, I

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want my kids to understand a little bit as to why I

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kept going back and why I kept working during COVID because how do you

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explain that to a four and a five year old that if mom

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had not made at home, how do you. How do you explain that kind of

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thing? So, started writing the really good stories about the times that

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I helped and. And the. Some of the things that I've done. And

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with that, then comes the lows of not

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wanting to. To revisit some of the super hard cases

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that absolutely broke you as a person, but that needed to happen,

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too, and writing them down, and it's like, okay, well, what do the.

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What do all these have in common? And it's. Well,

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it's intuition. Like, I trusted my gut and a lot of these cases,

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even though I didn't know what I was doing at the time, but

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I was going with my gut, and then I was advocating for my patients, and

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sometimes the docs would listen to me, and sometimes they wouldn't. And that's their

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own. That's of their own rights kind of thing. I get it.

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But the times that they listened to me, the patient outcomes were so much better.

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And so went back and said, okay, is this just

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me being super woo woo and coming at it out of

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left field and ended up doing some digging into the

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research on intuition. And so not only is there a ton of research

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on intuition that is peer reviewed and supported by

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evidence, there's also specifically intuition and nursing

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that has been reviewed and presented,

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and it's there. So if the. The evidence

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is there, if it's peer reviewed, if it's supported, we should be teaching it. So,

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that was the thought process behind intuition and nursing,

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and my book, nursing, how to trust your gut, save

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your sanity, and survive your career.

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And that's kind of led me to this moment of all of a

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sudden, getting on a couple of podcasts and really opening

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myself up left, right, and center. And you know what? Just

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going for it and being excited to be on the ride.

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Incredible. And thank you, because we are, all

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of us patients are clearly beneficiaries

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of your willingness to be courageous

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and step out and be like, this is my story. This deserves

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to be told. We've got to do better. That's what I'm hearing you say.

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Yeah. And this isn't just in isolation

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to Canada. No. This is everywhere. Most of this

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is everywhere. Most of the statistics and the evidence

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is coming out of the states. So I'm so proud of the

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US for being forward thinking with this and putting it

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out there. Now it's just up to the rest of the world to kind of

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pick it up and run with it. Yeah. Wow.

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So, okay, so obviously you have some

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credibility. Thank you for sharing all of that.

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Just like a little wisp of incredible. Don't

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belittle yourself. You have shared that. You have

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witnessed a few cardiac patients in your 16 years

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where we want to start there. What do you wish you could yell from the

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mountaintop to cardiac patients as they

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prepare to go to the ER? Like, what do

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you wish you could just yell to all of us? What do

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we need to know? First and foremost, please, if

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you're not just straight up bringing all of your bottles of

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medication with you, please, please, please bring

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a list of your medications and up to date

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recent lists. You know, people, I can't tell you how

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many times in a day both heart patients and others will sit in front of

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me and go, oh, I take a little white pill for my pressure,

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and you understand how many little white pills there

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are for blood pressure alone.

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And it's one of those things where it can have a

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huge impact, especially if you're unwell enough to become

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admitted to the hospital. We need to know where we're

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starting at, especially heart patients, your water pills, how much

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you're taking, how often you're taking them, what time you're taking

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them, because a lot of times people will be taking their water pills at dinner

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or later, and you poor souls, like, you're going to be up

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peeing all night long, and, and then you're going to be exhausted, and then

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you're not going to want to take your water pills. So, you know,

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please keep track of, of your pills. Any recent

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cardiology appointments, like if they've changed anything recently,

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please mention that if you've been having chest pains,

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please. Oh, my God. You've already got a cardiac history.

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You're already, you want to talk about credibility? You're already ten times

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more credible than most patients that I'm seeing. And your

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history alone already kind of jacks you head

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in the line. So with coming into the emergency room, we

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triage you. We have to sort everybody by, like sickest to non

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sickest. And your medical history alone

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puts you in the middle of the pack just to start. So I don't care

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if you're walking in out of nowhere, if you're telling me you've got a history

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of heart failure, you've had bypass, you've got stents,

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and then on top of that, you're either having dizziness or chest pain

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or shortness of breath. You've caught my attention, and

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I. I don't want you catching my attention because that means you're pretty

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sick. So if you're. If you're coming to hospital,

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if you're having new weight gain, all of a sudden,

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you've put on quite a few pounds. That needs to be

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noted because that's probably just water weight and it's probably in your poor

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legs, and so that needs to be assessed as

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well. How can we make sure that there's been a

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change? So all of a sudden, are you having chest pain or tightness?

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Are you then having an increase in your water weight, even though you're taking your

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pills as prescribed? And are you then not able to do what

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you normally do? So letting us know that there's been

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a change in your weight is fantastic.

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I never, ever get that information at triage, and I would love

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to know if all of a sudden, you've had a three, four, five pound weight

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gain in a week or two, that's significant. So I need to

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make sure that's looked into. Are your legs open? Are they

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weeping? Are all of a sudden your calves swollen when it's only your

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feet that are swollen? Because the swelling truly will just

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continue to come up your body in gravity

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so it can get to the point where then it gets to your lungs.

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And so this is why, if all of a sudden, you can normally sleep laying

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flat or maybe with just a little bit of, you know, one or two

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pillows, if all of a sudden you can't sleep, you have to sleep in the

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recliner. That's a big problem. So please,

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if that's the change that's been happening, please tell us, because then I worry

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that the fluids gone into your lungs, if you're coming

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upstairs, and the stairs, just doing that alone, just even a couple

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stairs or walking a couple of steps, gives you chest pain.

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Please, please, please tell me that and be open and

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honest with your level of pain. I understand that everybody feels

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pain differently. I understand that everybody

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reports things and feels things a little bit differently.

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And after multiple ER trips, after multiple years of being

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a heart patient, you kind of. You shrug it off. You've been to the ER

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enough, you don't want to go. So then you start saying, oh, it's not a

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big problem. You start putting it off and

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I get it. If I didn't have to be in the ER as a

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patient, I absolutely would not be.

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Truly, I understand. But it's one

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of those things where as time goes on, the more chronic your

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condition, the less you want to come to the ER. And unfortunately, by

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putting off coming into the ER when you're really not feeling too well at the

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beginning, leads you to have bigger cardiac

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events and potentially longer hospital stays

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or even, you know, instead of. If you would have come after a day

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or two, we would have just given you maybe a little bit of extra water

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pills, we would have seen that you're peeing out all that extra fluid, you're feeling

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better, we can send you home versus waiting a

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week, and then all of a sudden, oh, no, this is going to take a

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little bit of time. Now you're on oxygen. We can't send you home.

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So now you've earned yourself an admission. So it's one of those things

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where sometimes coming earlier, as much as it sucks to come to the

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ER, if you can, if something has changed, go,

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like, go to the ER. And truly, I'm not one ever

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to tell anybody to go to the ER, but

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having chronic heart conditions, you're kind of already at a loss.

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So you need to be able to recognize

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when something has changed, when something's feeling off. And

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again, trust your gut in your own care, like, you know your body

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much better than I do. So if you're telling me

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something's wrong, I don't know what it is, I'm just not feeling right.

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I'm feeling off. I'm going to take you at your word

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and I'm going to mark it down, and then I'm going to talk to my

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doc to be like, hey, here's the vitals. Here's what I'm seeing, here's what

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they're experiencing, but they're telling me something's wrong. And

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so I will take that to the moon and back, because

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really, the number of times people have said flat out,

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I'm going to die, they've been right and we haven't

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listened. And sometimes you get a little burnt out and you kind of want to

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kind of pat people on the hand and be like, no, it's fine, you're in

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the right spot. All these kind of things. After one,

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two, three, people do that to you. You start listening and you start paying

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attention. And so, you know, your body,

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if you can let me into what's going on in your

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body, you know, please do, because

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I want to help. I'm here to help. I don't want to keep you. I

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want to make you feel better. And then I, you know, the joke is treat

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them and stream in the ER. Wow. I've

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never heard that. No, we're going. Oh, my

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gosh. Treat them and straight up. You know, that's the whole goal of the

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ER, is just to bring it in. Let's, you know, overall,

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let's make you feel a little bit better so that you can go back home.

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We're not looking to keep you. We don't want to keep you. Trust me.

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The hospitals in Canada alone are overrun at this

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point. And if we didn't have to keep you, we wouldn't.

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So, please, just. The sooner you can come to

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an ER or even your family doctor, like, if you can scooch in to see

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them or your cardiologist, when things start to change, the sooner you

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can kind of get on it, the less likely that you'll potentially have to stay

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in hospital. Okay, so I'm hearing a

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few things here. Whoa.

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I'm hearing that humor helps.

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Laugh about it. We'd be crying all the time. Oh, I'm sure, I'm

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sure. But awareness. So the

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patient having an awareness of self. Yep.

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Cause I have spoken with so many

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heart patients now who were so

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disassociated. Cause it was so hard to

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come to terms with the situation. So it's this

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double edged sword. Cause disassociation serves us right. It

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makes everything less scary. However, if you're

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disassociated and you can't speak up for yourself, that's

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scary, too. That's even, dare I say it, more scary.

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Yeah. So that's probably why it's good to also have an advocate

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with you and then also showing up

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prepared. Please. That was really the only

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two. Just showing up prepared and having the awareness of

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the situation. And for me, I

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keep a running, like, notes

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tab open in my phone, and I just keep track

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of all the symptoms. Oh, I know what I was going to

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say. Being proactive. Yes. Less

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reactive. More proactive. Right. And so

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here's a struggle I've had, and I don't know if

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you can appropriately answer this. Well, I mean, just

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like, because it's hard to speak in the hypothetical, but. And

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especially because, like, you're not my care provider and you're in Canada,

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but it's hard to know

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as a heart patient, like, what

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truly is an emergency. And I'll admit to

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you just now, I learned so much from you. I mean, I've been on my

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own heart journey now for four years. And with this

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podcast and talking to so many healthcare providers, you would think I'd know

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a few things by now. And this is the first time

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I've heard someone say to me, hey, if you've gained

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weight and you. You quantify it, and it's in a certain

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amount of time, like, I had not thought of that before, and I've

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actually been on frickin weight pills or water pills. I

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mean, and so it's. It didn't come with a

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manual. Like, when I was diagnosed with my heart stuff and

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then had surgery, I didn't get a manual. I didn't get,

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like, this full on education that I needed, which is. That's

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why I started this podcast. Yeah. And good on you,

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because, like, truly, again, it's. It's not. The

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things I'm doing are not just for me, the things you are doing are not

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just for you. But we all end up learning

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in. In the overall. Right. Like, we're making up words now,

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but we're all. We're all learning. And that's just it. And

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it's. It's things that come up that

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I think are second nature. You've got a heart patient. They've put on

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some weight. Their legs are. So if you can push into your legs

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and your fingerprints stay. So that's pitting edema,

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and that's extra fluid in the area that needs to be kind

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of looked at. If that's worse than that normally, is that right

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now? So they

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can quantify it with how deep you can actually put your

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fingerprints and push in. So if there's

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1234 plus pitting edema, and

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most times by the time you're actually leaving a fingerprint, that's

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two to three plus pitting edema. But it

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gets to the point where a lot of her patients will have then cellulitis

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because your poor legs will get so swollen and you've put it

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off for so long that the pressure in the legs,

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it pushes against the skin, it stretches the skin. And then I've literally seen

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water drops come out of people's legs because

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the. The water retention is so bad and it stretch the skin to

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absolute max point and their poor legs start weeping. So at that

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point, your legs are open to then bacteria getting

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in. So then you can have really wicked

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leg and, like, cellulitis. So skin infections that

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are extremely hard to treat and to get under

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control, because once the legs are open, it's hard to come back from

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that. And I've seen people who are battling chronic

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cellulitis for years. They'll come in, we

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admit them, we treat them, we give them lots of water pills so that we

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take that pressure off the skin. Then we're giving them antibiotics to treat the

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infection. It takes days for them to kind of be

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able to heal well enough that they can. The skin

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stops weeping and, you know, the redness stops

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spreading and the sores kind of start to heal. But again,

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heart patients, if you've had cardiac surgery,

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you're more than likely they've taken vessels out of your legs, which,

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unfortunately, then your circulation to your legs and the return

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circulation from your legs is not nearly as good as it once was.

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I so then again, leads you to swelling in your

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legs that is harder to kind of deal with because

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that's one, two, three vessels that potentially

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you've lost to your heart to keep the heart going. But now your poor

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legs, now you have to try and deal with the swelling

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in your legs. So it's. It's a hard journey. I wouldn't wish it

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on anybody. But it's one of those things where

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there's a lot of things that are involved in

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cardiac care that people don't think are involved in cardiac

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care. So if all of a sudden you're short of breath, a lot of people

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don't equate that to your heart. They think, oh, it's respiratory. I'm sick

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with the flu or pneumonia or something like that,

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when in reality, it might just be that the fluid in your lungs has come

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up to the point where you just can't breathe. So then we

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have to come in and we have to deal with that, or your heart, the

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ejection fraction. So how well your heart's pumping. Your heart's been

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stressed, and now all of a sudden it's not pumping as well as it was,

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again, allowing for that buildup of fluids. So we

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typically, when you come in to the ER, you've been triaged,

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we've brought you back, we start doing tests. A lot of times

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we'll do what's called a troponin. So in Canada, we call it a troponin, which

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is one of the cardiac markers. So if it's an enzyme that's

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specifically in heart tissue, if there is suddenly a

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detectable rise in your blood work, that means there's been

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damage to specifically heart tissue. Whether it's been a lot of

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damage or a little, it's hard to tell, but we then will

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do another one, three to 6 hours later to make sure that

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there hasn't been an increase in it. Sometimes people will

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come in, I've been having chest pain for 20 minutes. Okay, we bring

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you back, we do all the blood work. There's no troponin in your system, but

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when we repeat it three or 6 hours later,

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all of a sudden there can be a rise. And that's because it takes time

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for the cells to leak the troponin to be able to have it come into

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your blood system. So a lot of

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cardiac patients, unfortunately, are always in for a three

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to six hour visit after getting blood work.

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And I like to tell people, hey, I've done the blood work. Coming back in

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45 minutes to an hour, depending. Unfortunately, the troponin usually

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takes roughly an hour in Canada to come back. But by that time, the

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clock has already started. So we need to do a troponin either three or 6

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hours from that original poke. We can repeat

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it, see if it's gone up, down, stayed the same.

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Perfect. So, you know, if you're coming in, you're having

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chest pains, but your troponin's fine and it's. It's either negative

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or stable. Some people will continually

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have just a little bit of troponin in their system because they've

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got cardiac conditions that, unfortunately, their heart's been strained.

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Either they're waiting for cardiac bypass or they're waiting

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for angiograms to be able to put stents into the heart.

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Sometimes we know where people kind of sit. So

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even if your troporin is a little bit elevated, if that, if we can go

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back into previous visits over the last six months, year, two

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years, and see that that's kind of your normal. We're like, oh, okay. That's kind

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of where they sit. That's acceptable. Wow.

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Honestly, it makes me want to do a, like, create a journal for heart

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patients. And I'm literally, my head starting to, like, go right now to be

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like, oh, I need to create this journal

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so that you can kind of have a daily map of like, okay, what's my

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weight? How are my legs? How is my shortness of breath? Do I have any

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chest pain? Is the chest pain same or different than the

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time I had my heart attack? Because again, if you say

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my pain feels the exact same as the last time I had

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a heart attack, we move a little bit quicker. Please don't

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use it as a get out of jail free card to kind of move through

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the ER a little bit faster. But again, you know how you

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feel. If this is feeling exactly the same as the last time you had a

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heart attack. I'm taking you five times more seriously than I

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already previously was. There's just sometimes key phrases that catch me,

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that go, oh, okay, no, we gotta, like, we gotta move this

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a little faster. There's a little bit more going on. And I want to know

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not only what the troponin is, but I wanna know what your blood pressure is,

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I wanna know how you're feeling, and I definitely wanna see your legs for

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sure. So, yeah, don't mind us if we're all, like, looking at your legs.

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It's just. It's a really random, great

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way to understand how much fluid retention you have, because you

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can. You can almost map it as it slowly moves

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up the body. And I've seen people where they've got generalized swelling,

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like, up past their waist, and you can do the

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fingerprint kind of push in and they stay and you're just like,

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oh, my God. So here's all the swelling on the outside of your body. Now

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putting pressure on the inside. You can't feel very good, and you're probably

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super short of breath to boot. Yeah, yeah.

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Wow. I think I just thought of a great collaboration for

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us.

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Yeah. I'm just sitting here with feeling so much

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gratitude for you and just knowing how much

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this episode is going to help heart patients.

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And I wish I had heard this years ago,

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and I just remember the first time I showed up to the ER

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not knowing anything was going on with my heart. And

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I had been trained as a wilderness first responder, so I

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knew all the symptoms of a heart attack and I knew

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deep down something was wrong, but I talked myself out of it.

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And how many patients have you had in your

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career where especially women who, like, talk

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themselves out of it or, like, it's probably just anxiety, or, you

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know, like, it's. Do not get me started on that. It's just

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anxiety line, because that drives me up a wall.

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I can't deal. And women have heart attacks that are

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so much different than men's. It's not usually your classic, you

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know, clutching the chest, the left arm, the jaw pain,

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the back pain. Like, it's nothing. Usually those

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signs, it's nausea. Oh, man. So I had a

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patient when I was first starting my career. She was this

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lovely 70 ish year old woman. She comes into my er, and again,

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it's a very rural hospital, so we don't have access to a lot. And she

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goes, oh, I'm just having, like, this two out of ten reflux

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and so you're going, oh, well, that's not a big deal. Like, wow, whatever. So

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we get her in, we end up doing the ECG, and it's a

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massive stemi. So the St elevated

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myocardial infarction. So the stemi is the one

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where on an ECG. So we put all the stickers on you. We

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asked you to stay still. It takes about 10 seconds. It's with that

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tracing, so we can actually trace the electrical input of your heart. And so

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we know how the electrical input in a normal heart is supposed to look.

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And depending on if there's stress in the heart or if there's been

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damage, the pathways will change. So just like, all of a

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sudden, you're walking your normal path, and

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all of a sudden, somebody's thrown in a big block of rocks that you

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can't get. Like, you can't do your normal path. You go around it,

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but that changes your path. So it's with the ECG that

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we can then see. All of a sudden, there's been changes in the path, some

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changes not super concerning, but may have. May let us

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know that maybe there's been damage in the past, other times, like

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in a stemi. So s T E M I. That is

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the classic big heart attack. You know, the very

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large. We have to do something absolutely

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immediately, heart attack. So, you know, we do

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this ECG. We see on the ECG that

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the ST segment of your heartbeat is

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elevated, so, which means there's been huge damage. So

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all of a sudden, everything changes. We're doing everything

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we can. We're in a very rural hospital. We give

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blood clot busting drugs, which, as

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a newer grad, were very intimidating because they're very high risk

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and they're very expensive. So you want to make sure that

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you're doing everything right. And so this poor patient,

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we bring her in. We're doing all the blood work. We're getting things going.

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We're trying to find a way to ship her out to the bigger center

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so that she can actually get then follow up. But in the meantime, we've been

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advised that we need to give this to rhombolytic, the clot busting

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drug. And so we give this clot busting drug, and,

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you know, unfortunately, you will see

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changes in the ECG, because, again, you're getting rid of all that

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block in the way. So then you're. You'll see the heartbeat, kind

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of the ECG. You'll see it change. And so it's called a

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repolarization rhythm, and it is very

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unnerving as the healthcare provider to watch this

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happen because it's happening 510 15 minutes

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after you've given the drug. And the patient

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sometimes really doesn't feel well because again, you're suddenly

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creating. You're opening up the pathway again, and then it's

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re hitting all the areas that were damaged. So it's a lot. And

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this poor woman, she's saying, like, oh, I don't feel so good.

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And you can see her kind of. Her color kind of

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starts to sour a little bit, so she gets very pale, then she

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kind of goes green. And you're like, oh, this is not good. And she goes

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gray a little bit. You're like, oh, man, this is so not good. But in

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the meantime, we're waiting for the chopper to come in,

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pick her up, and then take her to Thunder Bay, that the

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nearest large medical center nearest us. And

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so we're waiting. We're waiting. We hear the chopper land. I'm like, okay,

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thank God. Like, let's get this going. And, you know, you're trying

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to get things organized. Well, she says, like, oh, you know, she's kind

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of getting a little delirious and is kind of getting

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a little agitated and all over the place. And you're going, well, what's happening

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here? And she's like, I have to poop, I have to poop, I have to

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poop. And you're like, well, you know, at the time, I'm going, oh, well, I

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don't understand. So we put her on a bedpan, and as, unfortunately, she's

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pooping, she arrests. And so

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then it's a code blue, and we're trying to resuscitate her.

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And unfortunately, after. And that's just as

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orange is coming in. Like, the team is coming in to pick her up,

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and, you know, we're trying 2030 minutes. And unfortunately,

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she did pass. And it's one of those things

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where that patient is going to stay with me

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because it was two out of ten

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reflux feeling. Wow. And you're

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going, that's not what I've been taught. That's not what I've been. That's

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not how I think a classic heart attack would look like.

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That's not what I would expect. I don't even think she had any cardiac

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history. You know, lovely 70 ish year old woman

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just walking in, no big deal. And you're going

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like, oh, man, this went sideways so fast.

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And, you know, in talking to other nurses after everything had been

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done, because it's kind of, you do a debrief. So you kind of go through

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everything. You look at it again, you're like, okay, could we learn anything? Could we

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do anything differently? Was there anything we missed that we can make sure that we

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don't miss for next time? Like, you use it. It's kind of not just a.

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An emotional dump of all your issues, but

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you also learn. Use it as a learning opportunity. And

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so, you know, in talking, it's like, well, no. Like, this is what

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happened. And one of the older nurses kind of pipes up. She goes, oh,

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well, she was having the death poop. Like, what are you talking about, death poop?

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And she goes, well, it's when people have the urge to go,

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and they bear down, right? Like, you push to

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get everything out, and it's while you push down, you stimulate your

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vagus nerve in your neck, which then can drop your

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heart rate. And that was probably what

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allowed her not to be able to. Her heart to beat as well as

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it could have. So it's just some other weird,

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random sign that when people are very sick

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and they say, oh, no, I got to get up, and I got to poop,

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you'll see your experienced nurses. You're absolutely not getting up. It's

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not happening, because we've either heard or seen

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ourselves of people that you either get up to the commode or you get up

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to the bathroom, and. And they. They bear down, and

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they. They. So it's vasovagal. They

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vasovagal, and they. And they pass out,

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and they then either fall completely over

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or they. They stop their heart. So it's.

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It's a very odd thing. But, you

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know, if you were to google the number of people who pass away while

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on the toilet, it's. It's a thing, and

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it's people stressing their heart. Their heart as they're bearing down

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so hard that they activate the nerve and they just kind of throw everything into

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chaos, which is a really weird side conversation that we

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got down. Yeah, but

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nothing's ever a side conversation on this podcast.

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You never know who needed to hear that story truly.

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Right? Yeah. And we. At least in the United

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States, I don't know how Canadians are. Y'all seem a little more proper

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than us, but we don't talk about poop enough,

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and it's so important. And

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your quality of poop and how often you go. And I've

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had other guests on other healthcare providers who, you know,

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it's so important to have a healthy poop after heart

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surgery to start the detoxification process,

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and we've got to normalize. Talking about

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poop, asking about it, like, don't be, like, gross and

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perverse, but, like, it's so. It is such a

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vital function. And who knew that it

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could, like, the vasovagal response? Is that how you say

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it? Yep. You're banging on, okay, could result

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in death. That's bananas. To be fair,

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it's usually 80 and up,

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super unwell kind of population, but there are a lot of

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younger people who end up getting constipated. And so they're pushing and

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straining and they're pushing and straining and they end up same thing.

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They cue up the vasovagal response and usually they just pass

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out. And so they pass out. They hit their head on either the tub or

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the floor or sometimes the sink next to them, and

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they come to the ER that way, and it freaks

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them right out because they've never done this before. And you're like, yeah, well, this

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is what happens. And so, again, if you've had this,

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you know, we always worry about heart first, right? You know, we

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understand that nine times out of ten, it is just a vasovagal response and

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we're not super concerned about it, but we will investigate the heart because you

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can't not know that it's the heart that actually caused that in the first place.

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And then they passed out. So it's something

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to kind of keep in mind. And even after heart surgery, like, you're on opiates,

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like, the opiates slow your bowels and it's going to

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cause constipation. And you need to ask about stool softeners.

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You need to understand, at what day do I become very

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concerned? You know, like, sometimes it takes a couple of days to really get your

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bowels going properly again, and you're scared

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because I'm sure it hurts like the dickens, like, to your

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chest. So you don't, you know, you don't want to strain too hard because that

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then puts pressure on your chest, and that's got to hurt like anything.

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And so then you're not pushing as probably as hard as you normally would, so

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that you end up just getting backed up. But

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anytime there is a opiate prescription

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for more than I would think, five pills, I

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swear there needs to be a duplicate prescription for

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something for constipation. You know, I usually tell

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my patients that if you're going to be taking this and you're going to be

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taking this on a fairly routine basis, you're. You're having gallbladder

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attacks or you're. You're having diverticulitis or other things

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that cause chronic pain. Every time you take the pain

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medication, I want you to take a stool softener with it. That way, at

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least you're trying to keep yourself semi regular,

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because truly, there's nothing worse than a

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bowel obstruction where you can then actually vomit up fecal matter.

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Because if it's not coming out one way, it's going to come out the other

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way. Yeah. And that sounds like that could be catastrophic.

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It's not pleasant. That's usually a surgical.

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A surgical fix at that point. Yeah. Yeah.

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Thanks for taking us to medical school today.

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Yeah. It's these bodies of ours. I tell you,

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it's a privilege to age. It's a privilege

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to access medical care very

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much. It is not lost on me how

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lucky we are in the United States and Canada. And I know that I

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have european listeners, and I'm starting to get more listeners

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from Africa as well as Asia. And I want

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to. Yeah, I want to hear from all of you. I know I had some

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Senegal, Senegal listeners. I've been hearing

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from the Caribbean. I know I have folks listening to me in the

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Philippines. I mean, I could go. There's, like 55 countries

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now, and I want to hear your stories. Like,

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what? What is it like as a cardiac patient in these

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other countries? I would like to know. We've spent time today

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talking about the United States and Canada with nurse Jen

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Johnson. But what is it like accessing healthcare

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in Hong Kong, in Australia and New

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Zealand? Like I said, I could go on listing all the countries, but

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it is insane. And the universal truth

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is, a heart is a heart. We all

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deserve access to medical care. No matter the color

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of our skin, no matter our economic status, pooping

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is for everyone. Everybody poops. Yep.

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It doesn't matter where you live. It is really important to poop every

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day. So let me just normalize that. Hi. I'm 46 years old, and I'm

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talking about pooping. But, like, seriously. And

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that the heart is our greatest

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teacher. And so whatever you're facing

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today, I'm not talking to you necessarily, Jen. I'm

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talking to the listeners. Listen, whatever you're facing today,

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like, it's scary, get curious. What is

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this here to teach you? What is this about? And

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you have a choice today in choosing your attitude and

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how you choose to think about the situation

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and allow any emotions to come up. But if that emotion

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is not serving you, let it go and just

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keep advocating for your health care, no matter where

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you live. Can I say one more thing? I was going to ask

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you to. To be fair, no one

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tells you that you're allowed to grieve the loss of your health. Ah.

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No one tells you that the loss

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of the ability to just shrug your shoulders and be like, that's nothing.

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You know, once you have a chronic condition, you can't just shrug your

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shoulders anymore and pretend like it's nothing. Like it's.

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It is a huge change. And, you

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know, the worry that that brings is

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understated to the nth degree. And, I

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mean, you're losing a part of your health that you

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didn't realize you had to worry about. So

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it can be extremely stressful. And then throwing in medications

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and doctors visits and er visits and nurses

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and all these other things that you now suddenly have to think about

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is a lot. And I

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will vouch for therapy 16,000 times

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over. You are allowed to be sad about losing

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that ability to just not worry about it because now, unfortunately, you

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have to worry about it because it could be something. Now that you've got

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this past medical history, it could be something.

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So feel free to take all the time you need to

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grieve and to be mad and go through all

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the five stages of grief. You know, you can be angry,

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you can deny it all you want, but it's still going to happen. But you

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need to get to acceptance, because that way you can be

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an active participant in not only your own health, but then advocating for your health.

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And that truly is something that, you know, the more you can

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understand about what's going on and honestly ask questions, please ask

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all the questions. People sometimes will get upset because you're taking a lot of

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time, but if you've got somebody who's got any sort of

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medical background and you've got them not necessarily hostage, but,

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you know, you're their patient, ask them. Ask them all

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the questions. Because honestly, you will learn so much, not only by being

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kind and appreciative, please do not ever

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scream or hit your nurses or your physicians or

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anybody trying to help you. The nicer you are, the more we're

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willing to give. And so if I come across you,

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and you're super appreciative, you're very nice, we just want to figure

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out what's going on. You can still be afraid. You can still be upset

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without taking it out on me. Not to say I don't understand to a point,

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but it's not exactly going to endear me to wanting to go above

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and beyond and help you. So the nicer you can be, the

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more appreciative you can be. We can't take

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cash gifts. Donuts are always appreciated. Coffee is

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always appreciated. And honestly, just a thank you card,

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because we never. The thank you cards are the things that keep us

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going. So if you happen to remember the name of your nurse and just

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send a thank you card afterwards, it means a lot

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and it lifts us up. When we have just a really

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bad day, when nothing seems to go right, we can go back to that and

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say, okay, I did okay here, and I did what I needed to do

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here. And it gives you a little bit of. A

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bit of strength in continuing on because it's a.

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Not an easy gig, and neither is living with heart disease. So,

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you know, let's work together and let's get you feeling partnership.

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Yeah, it sounds like a partnership. Yeah.

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Thank you for that. And I said all what I said from the

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place. I've reached acceptance because I'm

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now in year four of my heart journey, and I've been working

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intensively with a therapist and doing EMDR and

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all the things to get to where I'm at now, but I had to go

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through all the grieving process. And then when

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there's a new symptom or there's a new issue, because I'm still

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a heart patient, I have to start the grieving process all over

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again. So I just want to, like, normalize

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saying, what the fuck?

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Absolutely. And then. And then I have your pity

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party and then get in the driver's seat of your healthcare.

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Yeah, yeah. If you're passive about it,

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you know, it doesn't really lend us to be like, okay, well, if you're super

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non compliant with your medications, you don't even know what you're taking. You don't know

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how often you're taking it. If you're playing around with it, if

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you're not taking things seriously, we can figure that out pretty quickly by

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past medical history. So, you know, again, it doesn't endear us

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to go above and beyond. If it's an issue of not being able to afford

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medication and that's why you're non compliant, please tell your physician, because

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there are a multitude of drug companies that

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have extended coverage for certain

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medications. And if your doctor can get you into one of those

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programs or do a referral, get in there and take the

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drug companies for all they're willing to give, because sometimes they'll do

Speaker:

free samples, sometimes they can decrease the amount that you're the

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paying depending on which medications that you're on. But

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honestly, go to your family physician or your cardiologist and

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say, like, hey, I'm having a really tough time affording everything, and I understand

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that I need to be taking these daily or twice a day or

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whatever, but I'm having trouble affording them. Is there a way, is there anything that

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you know of that I could apply to or participate

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in to be able to make sure that I can afford my medications?

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Wow. I feel like we could talk all day. Listen,

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I probably could. I just so appreciate

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your generosity and giving to the

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audience. And I will obviously have links in the show

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notes for how to get in touch with you. But do you just want to

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quickly verbalize how folks can find you? Yeah. So

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you can find me at rxforgrowth. F o r g r

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o w t h. You can find me on

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Instagram at Ernurse Jen with two ns. You

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can find me on LinkedIn b.

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Scnrn. You can find my journals on

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Amazon. If you ever want to gift one to your

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nurse, man, they will love you forever

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and shameless. Plug on my half. So if you look up

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100 shifts, a care planner for nurses on Amazon, they're

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available on Amazon. I'm on Etsy. If you want to find me on

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Etsy at the intuitive nurse, I'm kind of all over the place.

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TikToker nurse Jen with two n's, you know, usually

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just, wow. Usually just goofy stuff for nurses. I love it.

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Yeah. But, you know, we. We want to be here to

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help. And there's nothing better than watching someone come in

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really sick and being able to watch them walk out the door. Door,

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whether it be that shift or in a couple of shifts or in a couple

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of weeks. There is something so satisfying about knowing

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that I was able to help. And that's what we're all

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doing it for. You know, it's not for usually

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any other reason because it's too hard to do it for any other

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reason than if then you have to love it. So. Yeah,

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yeah. It's just, it's a lot. So understand that

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we're just people, truly and honestly.

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Well, thank you so much. And I hope, listeners, you will

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blow it up for nurse Jen Johnson and give her a

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follow. And I have a feeling we can learn so much more from her.

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So, Jen, thank you so much. And for my listeners,

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please be sure to come back next week for another episode of

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Open Heart Surgery with Boots. In the meantime, if you have already,

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please subscribe to this podcast. And you know what will

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really make my day is if you leave

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a review. And then, most excitingly, what

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will make my day even more is if you

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will check out my Patreon community. I

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am just now launching it and there are three different

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tiers of membership and I

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am so excited about this. I have been naturally

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communicating or connecting heart patients around the world.

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It's kind of banana pants how folks are starting to find each

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other through this podcast. And so now I'm formalizing

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it and so the Patreon link will be in

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the show notes and I would love it if you

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would take a risk. Give me just the cost

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of a coffee and a muffin

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and join the Patreon community so we can all come together

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for our hearts and tell poop stories. So,

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until next time, I love you.

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Your health matters and your heart is your greatest teacher.

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