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Episode 5: Hair Loss in Hyperparathyroidism
Episode 527th April 2024 • Hyperparathyroidism: A Patient's Perspective • Lisa Marie Olson
00:00:00 00:03:49

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In this short episode, Lisa Marie shares the impact Hyperparathyroidism has had on her own hair, the inappropriate comment from an endocrinologist, and her tips for maintaining and protecting the hair during your parathyroid journey.

RESOURCES

The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

Hyperparathyroidism

https://www.nhs.uk/conditions/hyperparathyroidism/

Normocalcemic Hyperparathyroidism

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

Hyperparathyroidism Support & Information - Patient to Patient Support Group

https://www.facebook.com/groups/406980976340533

NICE Guidelines

https://www.nice.org.uk/guidance/ng132

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

Transcripts

Lisa Marie: [:

I remember when I raised this symptom with, or this problem with one of the doctors that I saw, the doctor looked at me straight in the eye and she said, do you dye your hair? It was if to insinuate that this may be in some way the cause of all my hair problems and not the disease.

And as a former hairdresser I can tell you that there is nothing that I was putting on my hair at that time or have put on my hair since that could

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cause that kind of damage. Certainly not a receding hairline and certainly not the breakage and the thinning of the hair.

I have been suffering from all of that since The very beginning of the disease and it was very gradual to begin with. , and then as my symptoms worsened and my numbers, my, blood levels of my , PTH et cetera

increased. So did my hair issues I was getting and still get hair loss when I was washing or showering.

, sometimes it's more, sometimes it's a little bit. less lose hair when I'm brushing, whilst I'm sleeping. Often the bathroom floor is covered in hair. I have very thin patches, particularly around the front of the hair and my hairline. And, specifically for me, the left side of my hairline seems to recede significantly when

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my bloods are up.

I can see now much more of my scalp than I could before I had hyperparathyroidism and there is constant breakage at various points. My hair has completely changed texture and has become quite frizzy, where it hadn't been before. With that said, I thought I would share my tips for keeping hair as healthy as it can be whilst you're on your hyperparathyroidism journey.

For me, it's down to choosing the best shampoo and conditioner that I can afford within my budget. I've chosen a customised, formula to combat the specific issues that I'm having. And I find that paraben and sulfate free shampoos and conditions are much better. When styling my hair I always use a protective serum and leave in conditioner to help protect the weak areas and wherever

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possible I let my hair dry naturally.

If I am drying my hair then I use the coolest setting and the largest barrel brush that I can to help prevent over drying and tangling. Whilst all the aforementioned will not prevent hair loss or any other hair related symptoms. it should help keep the remaining hair more manageable and in the best possible condition.

Hopefully that's helped give you a little insight as to hair loss in relation to hyperparathyroidism and the very small steps that we can all take , to help preserve what we have left. Thank you for listening. I hope that you will join me in Episode 6 where we discuss dental issues in relation to hyperparathyroidism.

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