Dr Sam Moxon narrates his blog written for Dementia Researcher.
We tend to picture dementia as a slow decline measured in months and years, tracked through cognitive scores and longitudinal data. Sam has watched several relatives live with the condition, and from a family seat it looks nothing like a line on a graph. In this blog he writes about his grandfather, who some days could hold a full conversation and other days had no idea who Sam was. Time stopped behaving normally. It folded back on itself when a question got asked again five minutes later, stretched out as his grandfather paused to think, then collapsed entirely after long spells of apparent stability.
In this blog Sam asks a question that should matter to every dementia researcher: when we say a therapy slows progression, do we mean more real time with the people we love, or just a graph that looks better? Behind every data point is an experience, and it might look nothing like the trend in our papers.
https://www.dementiaresearcher.nihr.ac.uk/blog-unexpected-things-dementia-teaches-us-about-time/
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Dr Sam Moxon is a biomaterials Research Fellow at University of Birmingham. His expertise falls on the interface between biology and engineering. His PhD focussed on regenerative medicine and he now works on trying to develop 3D bioprinting techniques with human stem cells, so that we better understand and treat degenerative diseases. He is also the Founder and CEO of Aegis FibreTech. Outside of the lab he hikes through the Lake District and is an expert on all things Disney.
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Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk
This podcast is brought to you by University College London in association with the National Institute for Health and Care Research, Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support.
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