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Cystic Fibrosis
Episode 413th November 2025 • The Practical Protection Podcast • Kathryn Knowles
00:00:00 00:28:56

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Hi everyone, Alan is joining me again to give us all insights into arranging protection insurance for someone living with cystic fibrosis. Cystic fibrosis is a condition that can be difficult to insure for life insurance. Historically, the life expectancy of a person living with cystic fibrosis has been much lower than average, which means that insurers see it as quite a high risk for a claim. The good news is that modern medicine has now significantly improved the outlook and half of people living with CF are now likely to live to at least the age of 56.

Unfortunately standard routes for personal critical illness cover and income protection are not currently available. The absolutely best way to be covered by these insurances is through group cover through an employer, but even then there can still be some technicalities that can cause an issue at point of claim.

The key takeaways:

  • Approximately 11,000 are affected by cystic fibrosis in the UK and 1 in 25 people carry the gene without knowing it
  • The median age for people living with cystic fibrosis that died in 2022, was the age of 33.
  • Three case studies of arranging life insurance for people living with cystic fibrosis.

Next time I am going to be talking about the FCA’s recent protection insurance paper and my interpretation of what this means for our industry going forward.

Remember, if you are listening to this as part of your work, you can claim a CPD certificate on our website, thanks to our sponsors NextGen Planners.

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