This week's episode is a wonderful lesson in triumphing over adversity - a brave, beautiful and inspiring conversation for 'Blue Monday'. My guest is the incredible Charlie Beswick of facial disfigurement and visible difference charity 'More Than A Face'. Charlie is mum to twins Oliver and Harry - Harry was born with a rare craniofacial condition and is also autistic. Her experience led to her writing her best-selling book 'Our Altered Life', a brutally honest account of how she came to terms with a life she never expected and often resented.
UPDATE: This conversation was recorded in Spring 2022 - Charlie's beautiful wedding did go ahead on 24th April, with Harry playing 'You Are My Sunshine' on piano as she walked down the aisle.
*TRIGGER WARNING: *Birth Trauma, Feelings of Suicide, Negative Reactions to Disability*
IN THIS EPISODE WE DISCUSS:
[00:00] Teaser quote.
[01:47] Introduction to Charlie.
[03:20] Life before motherhood.
[04:43] Finding out she was having twins.
[08:12] The pregnancy - feeling good, followed by bed rest.
[09:52] The birth - waters breaking at 32 weeks.
[12:49] Meeting the boys.
[15:03] The shock of hearing Harry's diagnosis.
[19:16] Lack of support.
[20:48] Hiding behind a smile.
[23:40] The impact on her partner and her relationship.
[25:25] Coming out of hospital.
[26:50] Getting used to the ICU, feeling like a visitor rather than a mother.
[29:12] Bringing the boys home.
[32:32] Becoming aware that she needed help. Muscle memory of the shock.
[36:05] The relationship with Oli.
[39:05] The power of validation.
[39:41] Finally breaking down in front of her mum.
[41:07] Receiving Harry's diagnosis of Autism.
[45:40] Reaching rock bottom - planning to take her life. *TRIGGER WARNING*
[46:43] Recovery - medication and counselling.
[48:20] The need for self compassion.
[50:30] Charlie's work - charity 'More Than A Face' and helping mums accept their 'grief'.
[54:27] The affect on Oli of having a sibling with additional needs.
[58:07] The boys now, as teenagers.
[1:00:15] The happy ending.
[1:01:58] Charlie's book, charting her motherhood journey, 'Our Altered Life'.
[1:03:03] How to get hold of Charlie.
[1:03:33] Advice for when meeting a parent of a child with additional needs.
KEY TAKEAWAYS:
Early intervention is hugely important in terms of getting help. The earlier you seek support, the better in terms of your recovery.If you enjoyed this episode, please share, rate and subscribe. It really does make the difference in helping others find it – which means helping more parents in need.
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Email: bluemumdays@gmail.com
NEXT EPISODE:
Next week I speak to Amy Leigh Looper, a maternal leadership coach based in the United States. After a hugely successful career in enterprise software sales, Amy suffered postpartum depression with both her children. We discuss the impact this had on her life and how she has turned her drive and knowledge to coaching mums on her maternal leadership program, which reduces fear and anxiety and encourages connection, confidence and growth.
SUPPORT:
If you are struggling right now, please know that it’s okay to talk and reach out for help.
YOU ARE NOT ALONE AND WILL NOT FEEL THIS WAY FOR EVER.
We hope these support services are helpful (please note we do not check or monitor them individually).
*SPECIFIC TO THIS EPISODE:
The Katie Piper Foundation
www.katiepiperfoundation.org.uk
The Katie Piper Foundation helps individuals with burns and scars.
Changing Faces
www.changingfaces.org.uk
Changing Faces support anyone with disfigurements of the face, hands and body.
Helpline: 0300 0120 275 (lines open Monday – Friday 10am – 4pm)
Skin Camouflage: 0300 0120 276 (line open Monday – Friday 10am – 4pm)
Let’s Face It
www.lets-face-it.org.uk
Let’s Face It are a support network for anyone with facial disfigurement, as well as their families.
Saving Faces
www.savingfaces.co.uk
Support for anyone undergoing the treatment of Orofacial Cancers, trauma as well as other facial disfigurements, plus support for their families.
Contact a Family
www.cafamily.org.uk
Contact a Family offer support for all childhood conditions, are also able to put families in touch. Featuring a directory of conditions and rare disorders online.
Helpline: 0808 808 3555 (lines open Monday – Friday 9.30am – 5pm)
CLAPA – Cleft Lip and Palate Association
www.clapa.com
Information and support on cleft lip and palate treatment.
British Association of Skin Camouflage
www.skin-camouflage.net
Helping patients to increase confidence by the skilful application of skin camouflage.
Headlines
www.headlines.org.uk
Support to those affected by Craniosynostosis and associated conditions. Providing factual information and links to appropriate medical establishments experienced in treating these conditions. We also provide a friendly and confidential telephone helpline to all those affected.
About Face
www.omfsaboutface.co.uk
ABOUTFACE is a Patients’ and Carers’ support group. It has merged with a National Charity called Facial Surgery Research Foundation. It aims at helping present and future patients and carers to live through a difficult part of their lives as they are coping with the treatment of Orofacial Cancers, Trauma and other facial disfigurements.
The Healing Foundation
www.thehealingfoundation.org.uk
The Healing Foundation is a national fundraising charity championing the cause of people living with disfigurement and visible loss of function, by funding research into pioneering surgical and psychological healing techniques.
Facing the World
www.facingtheworld.net
Facing the World is a unique UK charity that exists to provide life-changing craniofacial surgery to some of the world’s most disadvantaged and vulnerable children from developing countries affected by severe facial disfigurements.
National Autistic Society
www.autism.org.uk
Support and advice for parents and carers of autistic children, including support to develop a greater understanding of their child’s needs and accessing services that meet the family's needs.
*GENERAL SUPPORT:
Action on Postpartum Psychosis (APP)
Moderated Forum, click here to find out more.
Email: app@app-network.org
Tel: 020 3322 9900
ADDA - the Attention Deficit Disorder Association
National Resource Center (NRC)/ADHD Helpline Health Information Specialists
866-200-8098, Monday-Friday, 1 p.m. — 5 p.m. ET
ADHD UK - peer support, created by people with ADHD for those with ADHD
The ADHD Foundation - the neurodiversity charity
Call us - 0151 541 9020
Email - info@adhdfoundation.org.uk
AIMS for better birthing.
Email: helpline@aims.org.uk
This email will go to a group of AIMS volunteers and someone will respond as soon as possible.
Telephone: +44 (0) 300 365 0663
You will be able to leave a voicemail message which will be sent to all our Helpline Volunteers. Please include your name, phone number and brief details of your enquiry. A Volunteer will try to call you back as soon as possible.
Andy's Man Club
A non-judgemental talking group for men
https://andysmanclub.co.uk/club-information/clubs/
Email: info@andysmanclub.co.uk
Association of Postnatal Illness
Helpline: 10am – 2pm – 0207 386 0868
Email: info@apni.org
Live chat online facility
Free NHS-accredited Baby Buddy app offering
evidence-based information and self-care tools to help parents during pregnancy
and early stages of parenting.
App users also have access to a confidential, text-based Crisis Messenger which provides
24/7 support for new and expectant parents who are feeling extremely anxious or overwhelmed.
email: info@bipolaruk.org
Email: support@birthtraumaassociation.org.uk
Contact CALM
on their national helpline: 0800 58 58 58 (5pm-midnight)
Email: lwise@talktalk.net (Liz Wise)
Mobile: 07773 283556
Contact: for families with disabled children
Support, advice and information for parents with disabled children.
Support dads to have successful relationships with their families, with mental health and accessing services through peer support and signposting.
kierananders@homestarthost.org.uk
0161 344 0669
Offers support and knowledge through a community of dads on practical parenting and fatherhood.
A digital safe space for fathers who wish to discuss their experiences of being black, a parent and masculinity in the modern world.
hello@dopeblack.org
Family Lives
An organisation providing immediate help from volunteer parent support workers 24 hours a day, 7 days a week.
Family Rights Group
Support for parents and other family members whose children are involved with or need social care services.
https://www.reachingoutpmh.co.uk/
Run by Mark Williams, campaigner, speaker and writer, offering support to dads.
A grassroots organisation committed to changing Black women and birthing people’s maternal health outcomes in the UK.
Email: fivexmore@gmail.com
Gingerbread
Single parents, equal families. Help and advice on the issues that matter to lone parents.
A directory of mental health support around the UK.
Supporting LGBT+ women & people globally on the path to motherhood or parenthood.
Email: contact@lgbtmummies.com
Make Birth Better (Birth Trauma Support)
Email: hello@makebirthbetter.org
Peer support available, email info@maternalocd.org to
arrange
Supporting and empowering anyone who has experienced pregnancy loss to advocate for themselves.
Email: info@bigoutreach.org
0300 102 1596
Dedicated to sharing and supporting the black maternal experience through peer support, projects and advocacy.
Offering Trauma, Mindfulness and Meditation sessions for Mothers and Mums to be with an NHS Mental Health Specialist, who’s also a Mother.
motivationalmumsclub@gmail.com
Open conversations around fatherhood, including blogs, peer support and podcasts.
I had the boys at 6:30 AM and at 10:30 AM the paediatrician
CHARLIE BESWICK:came to see Mark and myself.
CHARLIE BESWICK:The midwife had come sooner than that, but Mark was out making the phone calls
CHARLIE BESWICK:and she said, Oh, I'll come back."
CHARLIE BESWICK:And I just knew something wasn't right.
CHARLIE BESWICK:And so the paediatrician came back and he said, "Twin one"- who
CHARLIE BESWICK:we'd called Oliver- "is fine."
CHARLIE BESWICK:And at that point you just think "There's a but, I knew it.
CHARLIE BESWICK:What's gone wrong?"
CHARLIE BESWICK:And he said "Twin two, Harry, has been born with what we think
CHARLIE BESWICK:is called Goldenhar syndrome.
CHARLIE BESWICK:So for him, he's got no eye, no eye socket, no ear, no nostril, a short,
CHARLIE BESWICK:underdeveloped jaw on his left hand side.
CHARLIE BESWICK:We think he'll have brain damage, and it's unlikely that he'll ever walk."
CHARLIE BESWICK:And I remember the doctor, I remember him drawing a line down the centre of his
CHARLIE BESWICK:face and sweeping his hand to the left as if he was erasing everything there.
CHARLIE BESWICK:And after that, most of what he said sounded like it was underwater.
CHARLIE BESWICK:I just, my brain just couldn't really comprehend much other than that, I
CHARLIE BESWICK:just, yeah, went into complete shock.
VIKKI:Having a baby is meant to be the most joyful time of your life.
VIKKI:But for many mums and dads it can be the hardest and at
VIKKI:times the darkest of places.
VIKKI:Welcome to Season 2 of Blue MumDays, the podcast for anyone
VIKKI:struggling with parenting.
VIKKI:All the stories shared here are from the heart.
VIKKI:These are real conversations and may be triggering, so
VIKKI:please listen with discretion.
VIKKI:Today's episode covers feelings of suicide and birth trauma.
VIKKI:We will also signpost you to help in the show notes.
VIKKI:This episode was recorded during the spring of 2022.
VIKKI:Charlie Beswick is mum to 16 year old twins, Oliver and Harry.
VIKKI:Harry was born with a rare craniofacial condition and is also autistic.
VIKKI:Charlie is the author of bestselling book, 'Our Altered Life'.
VIKKI:It's a brutally honest account of how she came to terms with the life she
VIKKI:never expected and often resented.
VIKKI:She's also a mentor to other mums who find themselves with an altered life.
VIKKI:In addition, she's an award-winning blogger and her family's story
VIKKI:has featured internationally on Sky TV and in national press.
VIKKI:Charlie is also the founder of the charity 'More Than a Face', where
VIKKI:she educates young people on facial disfigurement and visible difference.
VIKKI:Welcome to Blue MumDays Charlie, how are you today?
CHARLIE BESWICK:I am good.
CHARLIE BESWICK:I am delighted to be with you.
CHARLIE BESWICK:Thank you.
VIKKI:Thank you so much.
VIKKI:I remember coming across your story on I think LinkedIn and
VIKKI:just finding it so moving.
VIKKI:I think you'd put a post out about the work you were doing with schools
VIKKI:in terms of educating children around others with visible differences.
VIKKI:And I just think it's something that is often taboo and children
VIKKI:don't have filters sometimes in terms of what they, they see or
VIKKI:their curiosity about somebody.
VIKKI:And I think it's incredible work you are doing to educate them on, you know,
VIKKI:speaking to people with sensitivity and also understanding disabilities
VIKKI:and disfigurements and related issues.
VIKKI:So it's an absolute honor to have you on today.
VIKKI:Thank you for joining us.
CHARLIE BESWICK:Thank you very much for inviting me.
VIKKI:I was just thinking, first of all, if we could just talk a little
VIKKI:bit about what your life was like before you had your twins and, and
VIKKI:what you were like as a person?
CHARLIE BESWICK:Sure I was a perfectionist.
CHARLIE BESWICK:Very driven, very focused.
CHARLIE BESWICK:Yeah, I got a first class degree, as a mature student, if you can call 21 mature!
CHARLIE BESWICK:I did
VIKKI:Oh, wow!
VIKKI:, CHARLIE BESWICK: I'm not quite sure
VIKKI:But technically I was!
VIKKI:So yeah, I've always applied myself really well, given the very best of, of who I am.
VIKKI:One of my mantras is to sort of make the people that I love proud of me.
VIKKI:That's a little bit of a hangover from a childhood where I strived to make people
VIKKI:happy, um, and proud, during a particular sort of challenge of growing up with, um,
VIKKI:difficult parenting and things like that.
VIKKI:So that's a legacy that I live with.
VIKKI:So striving to be the very best, to do the very best and to make
VIKKI:people around me really proud.
VIKKI:I wanted to be a teacher or involved in child development in some
VIKKI:capacity, so I did a psychology degree and as I say, was super,
VIKKI:super focused on making a difference.
VIKKI:That was always the plan for me.
VIKKI:So you've always had sort of purpose at the core of what you do?
CHARLIE BESWICK:Yes, definitely, definitely.
CHARLIE BESWICK:And that purpose has, it's shifted- it, you know, manifests in a
CHARLIE BESWICK:different way now- but it's still very much around making a difference.
VIKKI:So when you found out you were pregnant, did you know immediately
VIKKI:that you were expecting twins?
CHARLIE BESWICK:No!
CHARLIE BESWICK:I was about five weeks pregnant, so it was very early and
CHARLIE BESWICK:had quite a lot of hip pain.
CHARLIE BESWICK:And so the doctor sent me for an early scan in case it was an ectopic pregnancy.
CHARLIE BESWICK:And the sonographer, if that's the right word, I'm not sure!
CHARLIE BESWICK:She said "It looks like there could be two, but I'm not sure."
CHARLIE BESWICK:And so I told my partner at the time and he just said, "Oh, no way.
CHARLIE BESWICK:It will just be a fluke, it won't be twins".
CHARLIE BESWICK:And so I went back two weeks later and clear as day, we've got two
CHARLIE BESWICK:little sacks, two thumping heartbeats.
CHARLIE BESWICK:And I rang him from outside the hospital and I just said, "They're waving!"
CHARLIE BESWICK:And he said, "Oh brilliant.
CHARLIE BESWICK:What they?
CHARLIE BESWICK:Wait, what?!"
CHARLIE BESWICK:So yeah seven weeks -ridiculously early to be finding out that we were having twins.
CHARLIE BESWICK:But it just meant the excitement started a bit sooner for us.
VIKKI:Did you have like twins in the family?
VIKKI:Was there a family history?
CHARLIE BESWICK:So my nan's mum, was one of twins, I think, along that side.
CHARLIE BESWICK:But nothing that made us question that we'd be next, certainly.
CHARLIE BESWICK:And my boys are non-identical, so that is because I released two eggs.
CHARLIE BESWICK:So that is the hereditary part of twins.
CHARLIE BESWICK:Anybody can have identical twins, which I didn't realise before I had my boys.
CHARLIE BESWICK:So yes, it's in the genes somewhere, but we didn't expect it.
CHARLIE BESWICK:It was a total surprise.
VIKKI:And what was your emotion when you found out?
VIKKI:Because for some people it's an absolute delight, you know, 'instant family'.
VIKKI:For other people I can imagine it's very overwhelming.
CHARLIE BESWICK:Yeah I burst into tears once we found out.
CHARLIE BESWICK:Just the whole processing of twice the expense, twice the sleep
CHARLIE BESWICK:deprivation, twice the feeding, just the logistics I think.
CHARLIE BESWICK:But once we got our heads around that and it didn't take long, we were super,
CHARLIE BESWICK:super excited and everybody that I told just said, "Well, if anybody's
CHARLIE BESWICK:gonna have twins, it's going to be you.
CHARLIE BESWICK:You don't do jobs by halves.
CHARLIE BESWICK:You know, this has got, you written all over it!"
CHARLIE BESWICK:So it became quite the joke that of any of my friends or colleagues,
CHARLIE BESWICK:it would be me to have twins.
VIKKI:Yeah.
VIKKI:Yeah.
VIKKI:That's a pressure in itself though, isn't it?
CHARLIE BESWICK:Yes.
CHARLIE BESWICK:No, it definitely is.
CHARLIE BESWICK:And I will say one of the things I found really strange about having twins
CHARLIE BESWICK:is the amount of people that asked me if it was IVF or natural conception.
CHARLIE BESWICK:And I remember saying to somebody, um, a receptionist- she probably got
CHARLIE BESWICK:the brunt of this because it was like the 20th time I'd been asked- and I
CHARLIE BESWICK:said, "Do I ask you if you pay your car outright or if you need finance?"
CHARLIE BESWICK:Said, "it's nothing to do with me.
CHARLIE BESWICK:Why is my fertility such an issue?"
CHARLIE BESWICK:And I just found it quite invasive that people felt that they could
CHARLIE BESWICK:ask such a personal question.
CHARLIE BESWICK:So that really opened my eyes to the kind of comments and
CHARLIE BESWICK:mindset around twins, I think.
VIKKI:Yeah, I've not had multiple births, but I can imagine that
VIKKI:it's something that- you know, for any mums listening out there
VIKKI:that have been through multiple births and pregnancies- that that.
VIKKI:really resonates, because it's something that you don't even think about, you
VIKKI:know, people making comments like that.
VIKKI:And I was having a chat with somebody the other day for another episode, and we
VIKKI:were just talking about how when you're pregnant, it's almost like you become
VIKKI:public property and people touch your body or make comments about your body shape.
VIKKI:You know, "the bump's too big, the bump's too small, ooh aren't
VIKKI:you" this, that or the other.
VIKKI:And actually, that's quite a lot for the mum to take in when
VIKKI:your hormones are raging anyway.
CHARLIE BESWICK:Absolutely.
VIKKI:H ow did you find your pregnancy?
CHARLIE BESWICK:Great.
CHARLIE BESWICK:It was a really healthy pregnancy.
CHARLIE BESWICK:I had a scare around 10 weeks, had a little bleed.
CHARLIE BESWICK:But we were reassured everything was fine.
CHARLIE BESWICK:I had no strange cravings other than cereal and milk - I remember just wanting
CHARLIE BESWICK:to drink copious amounts of milk and yeah, it was a really great pregnancy actually.
CHARLIE BESWICK:I felt amazing.
CHARLIE BESWICK:I felt really healthy, really took care of myself.
CHARLIE BESWICK:And about 28 weeks into the pregnancy I started to lose
CHARLIE BESWICK:fluid around one of the babies.
CHARLIE BESWICK:So I was put on bedrest in hospital.
CHARLIE BESWICK:That was a bit of a scary period of time because I'm based in Stoke-on-Trent
CHARLIE BESWICK:in Staffordshire, and the closest bed, closest hospital that could
CHARLIE BESWICK:take both of us was Edinburgh!
VIKKI:Oh my God!
CHARLIE BESWICK:Yeah, so my mum came to the hospital and I was
CHARLIE BESWICK:crying just saying that "they might be sending us to Scotland!"
CHARLIE BESWICK:There was nowhere that could take 28 week old twins any closer than Scotland.
CHARLIE BESWICK:So that was, again, you know, something that you just don't realise
CHARLIE BESWICK:until you're in that position.
VIKKI:Yeah.
CHARLIE BESWICK:That neonatals are so, you know, resources are so tight.
CHARLIE BESWICK:Um, but yeah, so that was a little bit scary.
CHARLIE BESWICK:But other than that, a perfectly healthy, fine, great pregnancy.
CHARLIE BESWICK:I was scanned often, reassured everything was fine.
CHARLIE BESWICK:So yeah, it was great.
CHARLIE BESWICK:'Ignorance is bliss' as they say.
VIKKI:How long were you on bedrest for?
VIKKI:That must've been tough.
CHARLIE BESWICK:Only for about four days.
CHARLIE BESWICK:Um, we caught the fluid leaking very early, so it was complete bedrest.
CHARLIE BESWICK:I couldn't even get up to go to the loo.
CHARLIE BESWICK:And then things just settled down on their own, uh, until my
CHARLIE BESWICK:waters broke when I was 32 weeks.
VIKKI:32 weeks.
VIKKI:Wow, that's early.
CHARLIE BESWICK:Yes.
VIKKI:So are you happy to talk about the circumstances?
VIKKI:So what happened then?
CHARLIE BESWICK:So my waters broke on the Wednesday evening.
CHARLIE BESWICK:Um, I rang the hospital and they said, "Do you think you
CHARLIE BESWICK:might have just wet yourself?"
VIKKI:Nice.
CHARLIE BESWICK:Yeah, lovely!
CHARLIE BESWICK:"I'm really not in the habit of wetting myself, like I do
CHARLIE BESWICK:think my waters have gone".
CHARLIE BESWICK:Uh, so I went in slow labour, had some pethadine for pain relief, in the middle
CHARLIE BESWICK:of the night and I was dilating naturally.
CHARLIE BESWICK:Got to about seven centimeters and midwife was saying, you know, "everything's
CHARLIE BESWICK:moving along slowly, but okay."
CHARLIE BESWICK:And then they sort of were having a little rummage and they said, "oh,
CHARLIE BESWICK:it's not a head it's a bum, we need to get you into theatre immediately."
CHARLIE BESWICK:So this was six o'clock on the Thursday morning and they rang my partner,
CHARLIE BESWICK:my fiance at the time, and said "she's, having these babies in about
CHARLIE BESWICK:30 minutes, you need to get here".
CHARLIE BESWICK:Bear in mind, we lived about 40 minutes away from the hospital!
VIKKI:Oh my goodness.
CHARLIE BESWICK:They were literally like, well, I rang him at first and I
CHARLIE BESWICK:said, you know, "the babies are coming".
CHARLIE BESWICK:And then they took the phone off me.
CHARLIE BESWICK:They said, "you are far too relaxed.
CHARLIE BESWICK:You know, you need to get here- don't break the land speed
CHARLIE BESWICK:record, but you need to get here!"
VIKKI:Yeah.
VIKKI:Crack on.
CHARLIE BESWICK:So he literally ran down the corridor as I
CHARLIE BESWICK:was wheeled into theatre.
CHARLIE BESWICK:So it was, there were seconds that he got there in time.
VIKKI:But he was there?
VIKKI:Fantastic.
VIKKI:And how were you feeling, because obviously you weren't ready for
VIKKI:the birth to happen that early?
CHARLIE BESWICK:No, I wasn't.
CHARLIE BESWICK:Um, I think a couple of things really.
CHARLIE BESWICK:I was excited because I felt that I'd been pregnant for as long as an elephant.
CHARLIE BESWICK:We'd found out so early.
CHARLIE BESWICK:It didn't really, if I'm in all honesty, dawn on me that the babies
CHARLIE BESWICK:were going to be two months early.
CHARLIE BESWICK:It was just the case of "I feel like I've been pregnant for
CHARLIE BESWICK:12 months, let alone seven".
CHARLIE BESWICK:And so I was just so excited to meet them.
CHARLIE BESWICK:And the other thing that I remember - this was before the days of Facebook- and
CHARLIE BESWICK:I was on a website called TAMBA, which was the Twins and Multiple Birth Association.
CHARLIE BESWICK:It's now called The Twin Trust.
CHARLIE BESWICK:And there was an online forum and I just logged on and said,
CHARLIE BESWICK:"Girls, the waters have gone.
CHARLIE BESWICK:I will see you on the other side".
CHARLIE BESWICK:And I always remember that that was how I signed off my forum.
CHARLIE BESWICK:And after the events of having the boys, I remember thinking, 'wow, that was
CHARLIE BESWICK:a different person that wrote that".
VIKKI:Hmm.
VIKKI:Yeah.
VIKKI:It is incredible, isn't it?
VIKKI:It's something we talk about a lot on the podcast about how, as soon as you
VIKKI:have your baby, whatever happens, you have changed incredibly and nothing
VIKKI:can prepare you for that moment.
VIKKI:You can do all the right things.
VIKKI:And it sounded like throughout the pregnancy you were, you
VIKKI:know, really preparing as much as you could and in control.
VIKKI:But then when it happens, it's kind of taken out of your hands.
VIKKI:And, um, so are you, are you happy to talk about the birth and what happened?
VIKKI:So you were rushed into theatre
VIKKI:- CHARLIE BESWICK: Yes.
VIKKI:Um, emergency caesarean section.
VIKKI:We were told, we've got boys.
VIKKI:We didn't know the gender of the babies, so we were told there were two boys and
VIKKI:they were both whisked away to special care, which we expected because we knew
VIKKI:there were going to be small birth weight.
VIKKI:They were premature anyway, so that didn't come as any shock to us at the time.
VIKKI:I remember sort of waiting to hear them cry, as all mums do, waiting for that
VIKKI:anxious moment that feels like it just takes forever to hear the baby's crying.
VIKKI:And then they were whisked away.
VIKKI:My fiance, he remembers seeing them cover Harry's face in half, sort of
VIKKI:with half of the you know, the sort of towelling, the wrapping that they have.
VIKKI:But he thought nothing of it again, he just thought it was just a
VIKKI:position and the rush and so they were sent off to special care.
VIKKI:I was returned to the ward.
VIKKI:I'd been awake since six o'clock Wednesday evening.
VIKKI:So I've been awake all through the evening.
VIKKI:So I was exhausted, slept and snored apparently really badly, which is sexy!
VIKKI:And meanwhile, Mark had gone and rang everybody.
VIKKI:And told them that we'd got two perfectly healthy boys.
VIKKI:I was okay, recovering well, and yeah, just delivered the amazing news
VIKKI:that the two of us had become a four.
VIKKI:We'd got two boys and everything was great!
VIKKI:Did you have skin to skin contact with them or were
VIKKI:they literally just whisked off?
CHARLIE BESWICK:Whisked away.
CHARLIE BESWICK:Didn't see them, didn't nothing.
CHARLIE BESWICK:Nothing at all.
VIKKI:That, that's the trauma in itself for for you?
CHARLIE BESWICK:Yeah.
CHARLIE BESWICK:It was, it was, and I woke up and actually I remember, I don't
CHARLIE BESWICK:even know how long ago it was.
CHARLIE BESWICK:And, and I don't know, I think this is quite common with C-sections, but I
CHARLIE BESWICK:remember lying in the ward and feeling wind in my stomach and thinking,
CHARLIE BESWICK:"this is like the babies kicking."
CHARLIE BESWICK:It's like my body's punishing me and tricking me.
CHARLIE BESWICK:And just my body almost craving these little people again and not
CHARLIE BESWICK:being able to be anywhere near them because they were covered in wires.
CHARLIE BESWICK:Um, and Harry, we'll, we'll come to that in a second, but he actually went
CHARLIE BESWICK:to Manchester after the boys were born.
CHARLIE BESWICK:So I didn't see him for six, for six days, let alone skin to skin contact.
CHARLIE BESWICK:I didn't,
CHARLIE BESWICK:Yeah, so you've got premature twins, you know, low birth weight anyway,
CHARLIE BESWICK:and then he went away for six days.
VIKKI:And so when did you learn about your boys?
VIKKI:When did you see them?
CHARLIE BESWICK:So I had the boys at 6:30 AM and at 10:30 AM the paediatrician
CHARLIE BESWICK:came to see Mark and myself.
CHARLIE BESWICK:The midwife had come sooner than that, but Mark was out making the phone calls
CHARLIE BESWICK:and she said, "Oh, I'll come back."
CHARLIE BESWICK:And I just knew something wasn't right.
CHARLIE BESWICK:And so the paediatrician came back and he said, "Twin one", who
CHARLIE BESWICK:we'd called Oliver, "is fine."
CHARLIE BESWICK:And at that point you just think "There's a but, I knew it.
CHARLIE BESWICK:What's gone wrong?"
CHARLIE BESWICK:And he said "Twin two, Harry, has been born with what we think
CHARLIE BESWICK:is called Goldenhar syndrome.
CHARLIE BESWICK:So for him, he's got no eye, no eye socket, no ear, no nostril, a short,
CHARLIE BESWICK:underdeveloped jaw on his left hand side.
CHARLIE BESWICK:We think he'll have brain damage, and it's unlikely that he'll ever walk."
VIKKI:Wow.
VIKKI:Bam.
CHARLIE BESWICK:Yeah, literally.
CHARLIE BESWICK:And I remember the doctor -who we were in touch with for about another 12
CHARLIE BESWICK:years, and I adored him- I remember him drawing a line down the centre of his
CHARLIE BESWICK:face and sweeping his hand to the left as if he was erasing everything there.
CHARLIE BESWICK:And after that, most of what he said sounded like it was underwater.
CHARLIE BESWICK:I just, my brain just couldn't really comprehend much other
CHARLIE BESWICK:than that, I just, yeah.
CHARLIE BESWICK:Went into complete shock.
VIKKI:I'm not surprised, you know, lack of sleep, you've been through the
VIKKI:trauma of the C-section and so much to take in, in just one fell swoop.
VIKKI:Was your partner with you at the time?
CHARLIE BESWICK:Yeah, he was at my side.
CHARLIE BESWICK:And I remember looking at him thinking, this isn't right.
CHARLIE BESWICK:Is there a mistake?
CHARLIE BESWICK:Is there a, just really in that denial phase of, of the grief cycle, I think.
CHARLIE BESWICK:And he says- and I don't remember this- he said that "You just looked at me.
CHARLIE BESWICK:You just kept saying, I'm so sorry.
CHARLIE BESWICK:I'm so sorry."
CHARLIE BESWICK:And he said "You were crying but not sobbing."
CHARLIE BESWICK:Just the kind of where the tears just fall down your face.
CHARLIE BESWICK:There's no gut wrenching emotion behind it.
CHARLIE BESWICK:It was just, he just said, "You kept saying, I'm sorry, I'm sorry, I'm sorry.
CHARLIE BESWICK:And he said "You know, you don't have to be sorry.
CHARLIE BESWICK:You don't have to be sorry."
CHARLIE BESWICK:And I don't really remember that.
CHARLIE BESWICK:Um, but that was my first reaction was to apologise.
VIKKI:Oh my goodness.
VIKKI:So then what?
VIKKI:What happened next?
CHARLIE BESWICK:So then Mark went out and rang everybody back
CHARLIE BESWICK:again and told them the news.
CHARLIE BESWICK:My mum came straight to us, and I remember he put her on the phone and
CHARLIE BESWICK:I just said, "Something's wrong, mum."
CHARLIE BESWICK:And that's all I could say.
CHARLIE BESWICK:And then Mark spoke to her and my mum says, "At that time I
CHARLIE BESWICK:remember thinking, she's my baby.
CHARLIE BESWICK:I need to get to her regardless of what's happening with her babies, she's
CHARLIE BESWICK:mine and I need to know she's okay."
CHARLIE BESWICK:And so they came and said, "Do you want to meet the boys?"
CHARLIE BESWICK:so it was one o'clock the next morning because the boys were born
CHARLIE BESWICK:in Macclesfield which is in Cheshire, but they didn't have the capacity to
CHARLIE BESWICK:look after Harry because he needed so many scans and investigation.
CHARLIE BESWICK:So he was sent to Hope Hospital in Manchester.
CHARLIE BESWICK:And so they wheeled me to him and I put my finger through the incubator that he
CHARLIE BESWICK:was in, and he just put his little fingers around mine but his head was turned, so
CHARLIE BESWICK:his head was facing the opposite way.
CHARLIE BESWICK:So I just saw the back of his head and he just grabbed my little finger.
CHARLIE BESWICK:And then he went in up by ambulance and Mark went with him, um, up to Hope.
CHARLIE BESWICK:And I didn't see Oliver at that point.
CHARLIE BESWICK:Um, I think I saw Oliver probably the day afterwards -it's all a bit of a blur.
CHARLIE BESWICK:But again, he was just behind CPAP and wires and monitors
CHARLIE BESWICK:and things that were beeping.
CHARLIE BESWICK:And, you know, he just looked like a tiny little bomb that I couldn't touch
CHARLIE BESWICK:or go anywhere near, let alone hold.
CHARLIE BESWICK:And yeah, it was, it was really, really tough.
CHARLIE BESWICK:Really hard.
VIKKI:And how, what was their birth weight?
CHARLIE BESWICK:Three pound nine
VIKKI:So tiny, tiny.
CHARLIE BESWICK:Yeah.
CHARLIE BESWICK:They looked like little old men that hadn't grown into their skin, you
CHARLIE BESWICK:know, they were still a bit wrinkly.
CHARLIE BESWICK:And I look back at photographs now and just see that they looked
CHARLIE BESWICK:great considering everything.
CHARLIE BESWICK:But at the time, particularly with Harry, I really struggled to see
CHARLIE BESWICK:anything other than my failure.
VIKKI:And what support did you have around you?
VIKKI:Obviously your partner had to go off with Harry and you had
VIKKI:your mum there, but what sort of psychological support were you given?
CHARLIE BESWICK:Nothing.
CHARLIE BESWICK:None.
CHARLIE BESWICK:Nobody came to me.
CHARLIE BESWICK:Nobody asked questions.
CHARLIE BESWICK:I remember the midwife- and I've actually tried to find her on Facebook since
CHARLIE BESWICK:this, Rachel- she came and sat on the end of the bed, about the weekend after.
CHARLIE BESWICK:So I had the boys on a Thursday, so it would've been the Monday.
CHARLIE BESWICK:And she said, "I've had an awful weekend."
CHARLIE BESWICK:And I said, "Why"?
CHARLIE BESWICK:And she said, "Because I just, I was so sad and cross that this has
CHARLIE BESWICK:happened to you, and I just felt that it was really wrong and unfair
CHARLIE BESWICK:and I just, it spoiled my weekend because I just felt so mad for you."
CHARLIE BESWICK:And it was joyous to hear.
CHARLIE BESWICK:It was so lovely to hear somebody say this to me, because in the 48 hours
CHARLIE BESWICK:since the boys were born, all I'd heard was, "You are strong enough to do this.
CHARLIE BESWICK:If anybody can do this, it's you.
CHARLIE BESWICK:You've got this, we believe in you, you can do this!"
CHARLIE BESWICK:And it all came from such a lovely place of belief and people really wanting their
CHARLIE BESWICK:belief in me to, you know, sort of infuse into me, but it set a really high bar.
CHARLIE BESWICK:It set a really high standard for me to live up to, and in
CHARLIE BESWICK:that moment, Rachel just saying, "You know, this is just crap."
CHARLIE BESWICK:It was so lovely to go "Yeah, it is.
CHARLIE BESWICK:It really is."
CHARLIE BESWICK:And I needed more of that.
CHARLIE BESWICK:It was a 10 minute conversation that meant such a lot to me,
CHARLIE BESWICK:and I needed more of that.
CHARLIE BESWICK:And I didn't allow myself that.
CHARLIE BESWICK:I, I hid behind a smile and I now call that 'the lie we wear' - just
CHARLIE BESWICK:this smile that we paint on that says, "Yeah, I'm fine.
CHARLIE BESWICK:I'm okay.
CHARLIE BESWICK:Yes, of course I can handle this."
CHARLIE BESWICK:When all the time you're doubting yourself and imploding.
VIKKI:It's that sort of huge weight of expectation, isn't it?
VIKKI:And as you say, those comments were coming from the right place.
VIKKI:You know, people wanting to help and support, but actually words
VIKKI:like that can be really damaging.
CHARLIE BESWICK:Absolutely.
CHARLIE BESWICK:And now when mums contact me -and they reach out to me quite often- the first
CHARLIE BESWICK:thing I do is validate everything that they're feeling and say- I'm
CHARLIE BESWICK:a bit of a swearer so apologies- but I will say, "This is shit.
CHARLIE BESWICK:It is."
CHARLIE BESWICK:And they're like, "Thank you so much.
CHARLIE BESWICK:Nobody else is saying this to me."
CHARLIE BESWICK:Um, and I think the quicker we have those conversations, the quicker
CHARLIE BESWICK:we can move through and forwards.
CHARLIE BESWICK:Um, I didn't have that conversation for a long time and it was to my
CHARLIE BESWICK:mental health detriment really, that I didn't voice that, that I
CHARLIE BESWICK:pretended for as long as I did.
VIKKI:So for anybody who's listening, whose friend perhaps, is going
VIKKI:through an experience - obviously everybody's experience is different-
VIKKI:but a traumatic experience like that, or, you know, perhaps something is
VIKKI:wrong with their baby or one of their babies, what advice could you give them
VIKKI:in terms of helping and supporting?
CHARLIE BESWICK:I think it's a fine line between being positive
CHARLIE BESWICK:and optimistic and downplaying the emotions that the mum goes through.
CHARLIE BESWICK:And a lot of the time it's guilt and grief and shock.
CHARLIE BESWICK:So I think it would be something, what I needed to hear was, "You know,
CHARLIE BESWICK:if anybody can do this, you can.
CHARLIE BESWICK:But right now, this is crap and I am here for you.
CHARLIE BESWICK:And if you need to come and moan and whinge and cry and stamp your
CHARLIE BESWICK:feet and, you know, just swear, I'm somebody that will listen to that."
CHARLIE BESWICK:And I just think I needed that and that would've made all
CHARLIE BESWICK:the difference to me, I think.
VIKKI:So a safe space where it's okay not to be okay.
CHARLIE BESWICK:And not to be judged, because already I felt
CHARLIE BESWICK:that I'd failed my children.
CHARLIE BESWICK:Already, I felt like a bad mum.
CHARLIE BESWICK:I was like, "what sort of mum creates half a baby?"
CHARLIE BESWICK:So how can I ever admit that I blame myself or that I'm not happy for
CHARLIE BESWICK:this, or that I don't want this child, or that I'm worried that I can't
CHARLIE BESWICK:look at him, let alone love him?
CHARLIE BESWICK:Or how can I admit that when I've already failed him so massively?
CHARLIE BESWICK:And so those are the thought processes going through my mind.
CHARLIE BESWICK:So I just needed somebody to give me that space of non-judgment and
CHARLIE BESWICK:just "Get it all off your chest.
CHARLIE BESWICK:And it's a safe place with me."
CHARLIE BESWICK:And that's what I offer to mums now who don't have that.
VIKKI:Amazing.
VIKKI:And what we'll do is we'll signpost people to how to get hold
VIKKI:of you, at the end of the show.
VIKKI:What about your partner?
VIKKI:How did he cope and what was the communication between the both of you?
CHARLIE BESWICK:So he knew that I was struggling.
CHARLIE BESWICK:He didn't want to get upset and create any more pressure for me
CHARLIE BESWICK:to be the strong one for him.
CHARLIE BESWICK:And so he slipped into I guess ' man of the house' mode, you know?
CHARLIE BESWICK:Kind of doing all the logistics, ticking things over.
CHARLIE BESWICK:He still had to work after a few days.
CHARLIE BESWICK:So he would go to work and then he'd come to Macclesfield, to us, which
CHARLIE BESWICK:was 40 miles from where he works.
CHARLIE BESWICK:Then he'd drive another 40 miles up to Hope.
CHARLIE BESWICK:Then he'd come back to see me and Oliver in hospital still.
CHARLIE BESWICK:And so he was exhausted.
CHARLIE BESWICK:He says that he cried once in the car on his own.
CHARLIE BESWICK:That's all he did.
CHARLIE BESWICK:Uh, and he just powered through.
CHARLIE BESWICK:He just went into keep busy' mode, I think.
CHARLIE BESWICK:And we never talked, we never spoke about what we were going through individually.
CHARLIE BESWICK:We never cried together.
CHARLIE BESWICK:Um, which looking back is really strange cause I'm so open, I
CHARLIE BESWICK:wear my heart on my sleeve so much.
CHARLIE BESWICK:But I think we both went into self-protection mode.
CHARLIE BESWICK:I didn't want to cry because I was convinced he blamed me anyway.
CHARLIE BESWICK:So I thought I can't let him down.
CHARLIE BESWICK:I've got to be strong now, make up for this child that I've given
CHARLIE BESWICK:him and he didn't want to get upset and, and make me feel worse.
CHARLIE BESWICK:So we were just ships that passed really.
CHARLIE BESWICK:We got married when the boys were one years old, uh, just the week
CHARLIE BESWICK:before their birthday actually.
CHARLIE BESWICK:And then we separated when they were four and a half.
CHARLIE BESWICK:And had we spoken to each other, I don't know if the outcome would've
CHARLIE BESWICK:been different, but now I know when I'm talking to mums that communication is key.
CHARLIE BESWICK:We didn't, we just didn't.
VIKKI:When did you come out of hospital then?
VIKKI:And presumably was that just with Oliver?
CHARLIE BESWICK:So I was in hospital for just over a week and I came
CHARLIE BESWICK:home alone, and then the boys came out when they were seven weeks old.
CHARLIE BESWICK:Just trying to think about the maths now.
CHARLIE BESWICK:Harry joined Oliver when they were eight days old in Macclesfield, and
CHARLIE BESWICK:then they stayed there until they were just, I think six, seven weeks.
CHARLIE BESWICK:And we brought them home at that point.
VIKKI:So what was life like for you?
VIKKI:Were you literally just going back and forth all the time?
CHARLIE BESWICK:Yeah.
CHARLIE BESWICK:And I couldn't drive because I'd had the caesarean section, so was really
CHARLIE BESWICK:relying on the goodwill of other people.
CHARLIE BESWICK:And that was so hard because they wanted to question me, "do
CHARLIE BESWICK:you know what's caused this?
CHARLIE BESWICK:And how are you feeling?
CHARLIE BESWICK:And I'm sure he is still beautiful."
CHARLIE BESWICK:And I didn't want to talk to people, I just wanted to get to
CHARLIE BESWICK:my boys and just be with my boys and then be at home on my own.
CHARLIE BESWICK:And so I had to have this conversation, a day like Groundhog Day, day in, day out.
CHARLIE BESWICK:And I remember taking people to see Harry and they'd cry and I'd comfort
CHARLIE BESWICK:them, you know, and I'd almost have to say, you know, "It's fine!"
CHARLIE BESWICK:and reassure them that things were gonna be okay.
CHARLIE BESWICK:And it was just exhausting.
CHARLIE BESWICK:It was awful.
CHARLIE BESWICK:Again, you know, it came from a really well-meaning place, people were lovely.
CHARLIE BESWICK:People rallied around to give me lifts there and, you know, and Mark would
CHARLIE BESWICK:bring me home, but to drop me off.
CHARLIE BESWICK:But it was hard.
CHARLIE BESWICK:It was exhausting.
VIKKI:And how did you feel when you were with the boys?
VIKKI:Because as you say, there's all the barriers of the intensive
VIKKI:care unit, the wires...
CHARLIE BESWICK:Yeah.
CHARLIE BESWICK:It was strange- I think in no time at all you do get used to it . And you get used
CHARLIE BESWICK:to sort of what all the alarms mean and reading all the, the stats of the babies.
CHARLIE BESWICK:And then you see new parents come in two weeks later and you feel like a
CHARLIE BESWICK:veteran and you can see them jumping at everything in the same way that you did.
CHARLIE BESWICK:But yeah, so that was a journey in itself.
CHARLIE BESWICK:That was a process.
CHARLIE BESWICK:You know, you, you'd hear alarms going off and you'd think, "Is this it?
CHARLIE BESWICK:Are we losing them?
CHARLIE BESWICK:What does this mean?"
CHARLIE BESWICK:So you kind of lived on your nerves and that whole adrenaline rush.
CHARLIE BESWICK:But then I'd be ringing Mark saying "They've taken 5ml down a gravity feed.
CHARLIE BESWICK:Like it's amazing!"
CHARLIE BESWICK:And I was expressing milk, ridiculously.
CHARLIE BESWICK:I went into- as I do- all or nothing kind of powerhouse mode.
CHARLIE BESWICK:And I remember the nurse in special care saying, "We could feed every
CHARLIE BESWICK:baby with the milk you are providing.
CHARLIE BESWICK:You need to slow down."
VIKKI:Wow.
CHARLIE BESWICK:And I got mastitis because I just wouldn't stop.
CHARLIE BESWICK:So yeah, it was intense for me as an individual, as a person.
CHARLIE BESWICK:And for me as this new mum that was getting to know these
CHARLIE BESWICK:two very different babies.
CHARLIE BESWICK:And actually when I've looked back in time, I think one of the
CHARLIE BESWICK:saddest things for me is that I completely missed the fact that I'd
CHARLIE BESWICK:got one healthy baby with Oliver.
CHARLIE BESWICK:Harry's problems, completely eclipsed the whole process.
CHARLIE BESWICK:Having my boys was the worst day of my life.
CHARLIE BESWICK:And I hate saying that and I don't think any mother should say that, but it was.
CHARLIE BESWICK:It was the most traumatic day of my life and that completely eclipsed the fact
CHARLIE BESWICK:that I'd got one perfectly healthy baby.
CHARLIE BESWICK:So yeah, it was a slow process of getting to know their personalities.
CHARLIE BESWICK:I remember coming in one morning and one of the nurses that had been on night duty
CHARLIE BESWICK:saying that one, Oliver, always wants to be fed, and that one just wants cuddles.
CHARLIE BESWICK:And to this day, that's what they're like.
CHARLIE BESWICK:You know, it was really bizarre!
CHARLIE BESWICK:Four weeks old, and to this day, it's exactly like that now!
CHARLIE BESWICK:But there was this weird feeling that other people know my babies
CHARLIE BESWICK:more than me, better than me.
CHARLIE BESWICK:You know, they understand my own children and I don't.
CHARLIE BESWICK:So it was really alien, you know?
CHARLIE BESWICK:I didn't feel like a mum.
CHARLIE BESWICK:I felt like a visitor to these little people that were
CHARLIE BESWICK:being cared for by the nurses.
VIKKI:That's incredibly hard.
VIKKI:So when you finally got them home, how did that feel?
VIKKI:'Cause again, another massive process of adjustment?
CHARLIE BESWICK:Yeah, really scary because up until that point
CHARLIE BESWICK:we'd had experts on hand 24- 7.
CHARLIE BESWICK:So Harry came home with an apnea alarm, in case he stopped breathing in his sleep.
CHARLIE BESWICK:He was bringing his milk back down his nostril because we weren't quite sure
CHARLIE BESWICK:if his pallet had formed properly.
CHARLIE BESWICK:So Mark and I had to check on him every 20 minutes.
CHARLIE BESWICK:And that was 24 hours a day, so we took three hours shifts in
CHARLIE BESWICK:sleeping so that we could just keep checking on him through the night.
CHARLIE BESWICK:And he got this apnea alarm.
CHARLIE BESWICK:So we just, again, lived on adrenaline, and tried to feed these- they were
CHARLIE BESWICK:only ...Oliver was five pound one, harry was four pounds 12 when they
CHARLIE BESWICK:came out- so they were still teeny tiny babies in micro nappies.
CHARLIE BESWICK:You know, newborn nappies just drops off them, so they were in micro nappies.
CHARLIE BESWICK:So yeah, it was really hard, and it was scary.
CHARLIE BESWICK:I was 26, I was a young- you know, obviously not, not terribly
CHARLIE BESWICK:young mum, but I was 26 and it was a lot for me to take on.
CHARLIE BESWICK:Mark went back to work quite quickly, and so I was on my own with them and
CHARLIE BESWICK:my nan and my mum were phenomenal.
CHARLIE BESWICK:They were brilliant help.
VIKKI:So thank goodness you had them sort of around you, but again
VIKKI:it sounds like a lack of support.
CHARLIE BESWICK:Nothing.
CHARLIE BESWICK:And in fact, we had the first health visitor that came out to
CHARLIE BESWICK:see us came and sat in the lounge.
CHARLIE BESWICK:Think the boys were - the boys might not have even been home at that point,
CHARLIE BESWICK:or if they were, it was very recent.
CHARLIE BESWICK:And she said, "So I understand that your son's got some golden something or other.
CHARLIE BESWICK:Do you think it was something you did?"
VIKKI:No!
CHARLIE BESWICK:And I just looked at her and said, "Yes, I
CHARLIE BESWICK:do think it was something I did."
CHARLIE BESWICK:And I remember her walking, leaving the house quite, I was quite abrupt with her.
CHARLIE BESWICK:And I rang the service and I said, "Don't ever send that woman to my house again."
CHARLIE BESWICK:Um,
VIKKI:not surprised.
CHARLIE BESWICK:And just the sheer lack of common sense and kindness,
CHARLIE BESWICK:in a role that requires those things as standard, . Was astounding to me.
CHARLIE BESWICK:So and I have done work with people- students who are training in those
CHARLIE BESWICK:fields- and use that as an example of how really not to interact with new mums.
CHARLIE BESWICK:Yeah, it was awful.
VIKKI:Oh my goodness.
VIKKI:I...
VIKKI:it's just breaking my heart, listening to all of this, you know, and
VIKKI:everything that you've been through.
VIKKI:So can you explain a little bit more about Harry's condition?
VIKKI:Because obviously with the apnea, was it?
VIKKI:That must have been, my God- as any parent, you worry about your
VIKKI:newborn baby, not breathing.
VIKKI:But to actually have that as a possibility...
VIKKI:that's torture.
CHARLIE BESWICK:Yeah.
CHARLIE BESWICK:And the alarm going off and then you jump up and you think, "this is it, he's dead."
CHARLIE BESWICK:And you get there and he's just rolled over and unplugged the
CHARLIE BESWICK:wire from his stomach and you just think, "oh my goodness!"
CHARLIE BESWICK:You know, you don't know whether you are relieved or annoyed or you, you
CHARLIE BESWICK:just have all these emotions on top of hormones, on, on top of sleep deprivation.
CHARLIE BESWICK:It was a melting pot.
CHARLIE BESWICK:It was a disaster waiting to happen in many ways.
CHARLIE BESWICK:And then a complete lack of support for me.
CHARLIE BESWICK:So yeah, it was difficult.
VIKKI:So when did you become aware that something was going on with you?
CHARLIE BESWICK:When the boys turned one.
CHARLIE BESWICK:So I knew before then, I remember my mum visiting and I was laying on
CHARLIE BESWICK:the sofa and I just whispered to her, "I feel like I've got half a baby."
CHARLIE BESWICK:And she just said, "You haven't, yeah, you, you know, he's a beautiful boy."
CHARLIE BESWICK:And I just couldn't properly connect with him.
CHARLIE BESWICK:Nothing to do with him.
CHARLIE BESWICK:Like if you look at photographs of him now, seriously, such a beautiful baby.
CHARLIE BESWICK:He's got my eyes eye, he's got my eye.
CHARLIE BESWICK:Um, and it's a really big round, beautiful blue twinkly eye and
CHARLIE BESWICK:this really mischievous smile.
CHARLIE BESWICK:Gorgeous baby.
CHARLIE BESWICK:I couldn't see any of that.
CHARLIE BESWICK:I looked to him, I saw failure.
CHARLIE BESWICK:I just saw an inadequacy to be a mother and a decent human being.
CHARLIE BESWICK:And for those reasons, I struggled to bond with Harry for my own reasons,
CHARLIE BESWICK:nothing to do with him as a baby.
CHARLIE BESWICK:And so when the boys were one, I remember it was almost like
CHARLIE BESWICK:my body knew when it was 10:30.
CHARLIE BESWICK:And I think it was possibly a little bit of PTSD from, from having the
CHARLIE BESWICK:news and, and it, I just had this feeling like somebody had just
CHARLIE BESWICK:walked over my grave and I relived every single second of that news.
CHARLIE BESWICK:And that actually went on for five years.
VIKKI:Oh my goodness.
VIKKI:Because at 10:30 was when you were...?
CHARLIE BESWICK:When they told me.
CHARLIE BESWICK:So I'd know at 6:30 that, you know you know, I'd say to the boys.
CHARLIE BESWICK:"Your birthday is when you were born, half past six, you came
CHARLIE BESWICK:into the world, happy birthday!"
CHARLIE BESWICK:But yet it was just like muscle memory.
CHARLIE BESWICK:And I was teaching one year and I remember just wanting to be sick and
CHARLIE BESWICK:looking at the clock and it was 10:30.
CHARLIE BESWICK:My body knew I, I didn't even, maybe I, maybe I was aware of it
CHARLIE BESWICK:in the background, I'm sure I was.
CHARLIE BESWICK:But yeah, it was just like muscle memory.
CHARLIE BESWICK:My body just would go into shock, in that moment of reliving it all over again.
CHARLIE BESWICK:It was really tough.
CHARLIE BESWICK:And so there was a few things that were going on with my mental health.
CHARLIE BESWICK:I was training to be a teacher when the boys were born, so I'd got that pressure.
CHARLIE BESWICK:And so I was trying to give everything to my teaching qualification and
CHARLIE BESWICK:be really strong and be really in control and be really, you
CHARLIE BESWICK:know, articulate with my studies.
CHARLIE BESWICK:And so that left very little to be a mum, at all.
CHARLIE BESWICK:And then I was trying to be everything to the boys and trying
CHARLIE BESWICK:to learn about Harry's syndrome.
CHARLIE BESWICK:And we were doing occupational therapy, had to have physio so that the left
CHARLIE BESWICK:hand side of his neck didn't perish.
CHARLIE BESWICK:We had to do all these tiny little things, black and white photographs and images
CHARLIE BESWICK:so that we could stimulate his vision.
CHARLIE BESWICK:It wasn't just feeding him, you know, we had to do vision therapies, hearing
CHARLIE BESWICK:therapies, physiotherapy with him as well.
CHARLIE BESWICK:Um, so I was trying to give everything there and I just was burning the candle at
CHARLIE BESWICK:both ends and a little bit in the middle.
CHARLIE BESWICK:But that's how I coped- be busy, be effective, where you can, "make
CHARLIE BESWICK:people proud because you've got a lot to make up for girl.
CHARLIE BESWICK:And don't be a wimp and sit and feel sorry for yourself.
CHARLIE BESWICK:You haven't got time for that.
CHARLIE BESWICK:You need to crack on."
CHARLIE BESWICK:So my internal dialogue was pretty relentless and quite harsh, I would say.
CHARLIE BESWICK:Like I would never speak to anybody in the way that I spoke
CHARLIE BESWICK:to myself in those moments.
VIKKI:So, so many of us do, you know!
VIKKI:We've got two episodes devoted to Self Compassion and how you need
VIKKI:to talk to yourself with kindness.
VIKKI:But my goodness, you really beat yourself up, didn't you?
CHARLIE BESWICK:Yeah.
CHARLIE BESWICK:Awful.
CHARLIE BESWICK:Yeah, I was nasty to myself.
VIKKI:Sorry - I'm just so moved by everything you're saying, so apologies-
VIKKI:it's very unprofessional, blubbing away!
VIKKI:And you talked about the bonding issue with Harry.
VIKKI:What was your relationship like with Ollie?
VIKKI:I mean, did you even have time to develop one because of all the
VIKKI:extra stuff you had to do for Harry?
CHARLIE BESWICK:I think for me it was very functional with both boys.
CHARLIE BESWICK:It was very functional, certainly the first 12 months.
CHARLIE BESWICK:But as I got to know their little personalities ... I would say past sort
CHARLIE BESWICK:of seven months, once we got onto the weaning of food stage and we were able
CHARLIE BESWICK:to have a little bit of communication and I saw them as little people in
CHARLIE BESWICK:their own right, that helped me a lot.
CHARLIE BESWICK:Up until that point, it was very much all on me.
CHARLIE BESWICK:And I did really struggle.
CHARLIE BESWICK:But I remember when the boys must've been about 13 and I apologised to Mark
CHARLIE BESWICK:and said that I felt that I'd been a weak and an absent mum, mentally.
CHARLIE BESWICK:And he said "You were a brilliant mom.
CHARLIE BESWICK:You were such a good mum to them when they were little.
CHARLIE BESWICK:You just don't see it.
CHARLIE BESWICK:You don't remember it."
CHARLIE BESWICK:My boys we're very, very close.
CHARLIE BESWICK:Harry's a real mummy's boy -actually so is Oliver!
CHARLIE BESWICK:We are super, super close as a unit, and so I don't think that
CHARLIE BESWICK:would've happened if I'd have been the mum that I imagine I was.
CHARLIE BESWICK:But I was just very conscious that in those formative years I was dealing
CHARLIE BESWICK:with so much on my own that I kind of just beat myself up a lot thinking
CHARLIE BESWICK:"Well, how could they have developed normally, typically- if you like-
CHARLIE BESWICK:with a mum that was absent mentally?"
CHARLIE BESWICK:But kids are resilient and they did.
CHARLIE BESWICK:And yeah, I fought their corner.
CHARLIE BESWICK:I did all of the things that I needed to do for both of them.
CHARLIE BESWICK:Um, and we've got an amazing relationship for that.
CHARLIE BESWICK:Not, you know, because of that, I think not in spite of it.
CHARLIE BESWICK:I fought for myself.
CHARLIE BESWICK:I fought for me to love them.
CHARLIE BESWICK:And in doing so, I think that
VIKKI:And because of everything that you did and all those efforts and
VIKKI:you are saying that you were mentally absent, but everything you're saying
VIKKI:to me sounds like you were absolutely there, but you had so much to deal with.
VIKKI:Everything that you did for your boys, especially with Harry, with all
VIKKI:the, the physio and the feeding and everything's there to care for him.
VIKKI:So you were, you were doing all the right things.
CHARLIE BESWICK:I remember the physiotherapist coming and
CHARLIE BESWICK:seeing us and she said as she was walking out the door, she said to
CHARLIE BESWICK:me, "He's so lucky to have you."
CHARLIE BESWICK:And I said, "What do you mean?"
CHARLIE BESWICK:And she said, "I see so many babies with the mums that don't know where to start
CHARLIE BESWICK:and don't want to, for whatever reason."
CHARLIE BESWICK:She wasn't being judgmental.
CHARLIE BESWICK:She just said, "He's so lucky.
CHARLIE BESWICK:He's got you doing all this And that was really...
CHARLIE BESWICK:it surprised me.
CHARLIE BESWICK:It really surprised me and I thought, "Wow, okay.
CHARLIE BESWICK:There are mums out there struggling more than me and I'm doing a good job.
CHARLIE BESWICK:Am I?"
CHARLIE BESWICK:You know, the fact that she didn't need to say that.
CHARLIE BESWICK:She wasn't my mum, she wasn't Mark, she wasn't just doing it to keep me happy.
CHARLIE BESWICK:And it was those sorts of people that validated me as a
CHARLIE BESWICK:mum I think, and really helped.
VIKKI:Were you able to take that in at the time, or did you not believe her?
CHARLIE BESWICK:and no, I questioned it, certainly I questioned it, but
CHARLIE BESWICK:it's something I kept coming back to.
CHARLIE BESWICK:I kept coming back to it and when I kept thinking I'm doing a really
CHARLIE BESWICK:rubbish job, I'd think "No, no- other people that don't have to say I'm
CHARLIE BESWICK:doing a good job, have seen that I am."
CHARLIE BESWICK:And so yeah, she will never understand how powerful those words were to
CHARLIE BESWICK:me, and the difference they made.
VIKKI:Yeah.
VIKKI:So if there's anybody out there listening who works in supporting Mums, that's it.
VIKKI:You never know what a difference your words can make.
CHARLIE BESWICK:Absolutely.
CHARLIE BESWICK:Yeah, completely.
VIKKI:What about your family and friends?
VIKKI:Were they noticing the changes in you?
CHARLIE BESWICK:In the beginning it was only mum that saw that, because
CHARLIE BESWICK:she was the one that would come to me.
CHARLIE BESWICK:And I remember she came to pick me up one morning to take me to
CHARLIE BESWICK:hospital and she walked into the kitchen where I was standing and she
CHARLIE BESWICK:could see that I was about to cry.
CHARLIE BESWICK:And then she put her arms around me and my legs completely gave way.
CHARLIE BESWICK:And I just howled.
CHARLIE BESWICK:It wasn't even a cry, it was just a howl.
CHARLIE BESWICK:And it almost came from the pit of my stomach kind of noise.
CHARLIE BESWICK:So she saw all of that when other people saw the smile and the "I'm
CHARLIE BESWICK:okay, yes, of course I'm coping!"
CHARLIE BESWICK:As the boys got older, so when they were sort of five or six and I got
CHARLIE BESWICK:closer to a depressive episode and not a full breakdown, but close enough.
CHARLIE BESWICK:The partner teacher that I was with, she knew because she could tell from
CHARLIE BESWICK:my mood, I was getting quite manic.
CHARLIE BESWICK:So some days I would go in and I would literally be literally bouncing, you know,
CHARLIE BESWICK:singing like somebody that had just had four Red Bulls for breakfast, you know?
CHARLIE BESWICK:And then other days I would go in and shut the door behind me and it
CHARLIE BESWICK:would be a cue- "Don't come in.
CHARLIE BESWICK:I'm not ready to talk to you."
CHARLIE BESWICK:And so she saw that very extreme change in me.
CHARLIE BESWICK:Because I would go to bed not knowing how I was going to wake up in the morning.
CHARLIE BESWICK:And so that really was a telling sign for me.
CHARLIE BESWICK:But the boys were a lot older by that time, and Mark and I had separated.
CHARLIE BESWICK:I was a single parent by the time that was happening.
CHARLIE BESWICK:And Harry had obviously been diagnosed with autism because that
CHARLIE BESWICK:happened when he was two and a half.
CHARLIE BESWICK:So on top of the Goldenhar- and lots of children that have
CHARLIE BESWICK:Goldenhar syndrome, cognitively are unaffected by the syndrome.
CHARLIE BESWICK:They, you know, live completely typical, um, cognition lives.
CHARLIE BESWICK:But autism runs in my family and I believe that it's genetic.
CHARLIE BESWICK:I don't believe it's caused by vaccines.
CHARLIE BESWICK:That's a whole different conversation.
CHARLIE BESWICK:But again, that, that's genetic.
CHARLIE BESWICK:So I felt that I'd passed that on to him.
CHARLIE BESWICK:And so we'd got the autism to deal with as well.
VIKKI:So when you got that diagnosis, that must have been
VIKKI:another big shock for you.
CHARLIE BESWICK:Yeah, it was, it was another blow.
CHARLIE BESWICK:Mark and I went to the assessment in different cars and I remember
CHARLIE BESWICK:I got into the car and I cried and punched the steering wheel.
CHARLIE BESWICK:And then I drove home and that was it.
CHARLIE BESWICK:That we didn't get upset about it.
CHARLIE BESWICK:Again.
CHARLIE BESWICK:It was just very much "Right, how do we move forwards?
CHARLIE BESWICK:How do we move forward from this?"
CHARLIE BESWICK:And I think there's a place for that, I really do.
CHARLIE BESWICK:But I don't think you can do that.
CHARLIE BESWICK:It's like building a house on sand.
CHARLIE BESWICK:Unless you address those real base emotions, anything
CHARLIE BESWICK:else just isn't productive.
VIKKI:What was your understanding of autism?
VIKKI:Because if we are looking back, so this would've been about 14 years ago?
VIKKI:There was such ignorance and lack of information and understanding
VIKKI:even amongst the medical profession about the autism spectrum.
CHARLIE BESWICK:Absolutely.
VIKKI:What did that mean to you and what were your fears?
CHARLIE BESWICK:Oh, so this is an awful thing to admit, but it is how, you
CHARLIE BESWICK:know, life was in the early nineties.
CHARLIE BESWICK:As a 11, 12, 13 year old with my mates walking home from school, we'd see a
CHARLIE BESWICK:special needs bus go past and people would be saying, "There are the 'biscuit
CHARLIE BESWICK:spitters', there are the 'window lickers'.
CHARLIE BESWICK:You'd be calling them all these names as if they were a separate entity- you know,
CHARLIE BESWICK:sort of aliens, separate to the world.
CHARLIE BESWICK:So I kind of just, it was just fear.
CHARLIE BESWICK:It was just, "Oh my days.
CHARLIE BESWICK:Is that what he's got for his life?
CHARLIE BESWICK:Is he going to be 'retarded'?"
CHARLIE BESWICK:A word again that we don't use now that we would've used then.
CHARLIE BESWICK:" Will he speak?
CHARLIE BESWICK:Will he know me?
CHARLIE BESWICK:Is he going to be some sort of vegetable that I have to care for forever?
CHARLIE BESWICK:Is he gonna have any sort of quality of life?
CHARLIE BESWICK:Is Oliver gonna have any sort of sibling relationship?
CHARLIE BESWICK:Am I gonna be a carer forever?"
CHARLIE BESWICK:I might have said that one already, but you, you know, just kind of all
CHARLIE BESWICK:of these things that go around in your brain, like a washing machine.
CHARLIE BESWICK:And just that whole unknown uncertainty.
CHARLIE BESWICK:"Will he ever speak?
CHARLIE BESWICK:Will he ever be out of nappies?"
CHARLIE BESWICK:It was just fear.
CHARLIE BESWICK:So, so much fear and so much unknown.
CHARLIE BESWICK:Um, and as it is, you know, he's made incredible progress and
CHARLIE BESWICK:hindsight's a wonderful thing.
CHARLIE BESWICK:You know, if I knew then what I know now, I'd have coped absolutely
CHARLIE BESWICK:fine because he is amazing.
CHARLIE BESWICK:But I didn't, you know, and it was just another blow.
CHARLIE BESWICK:And I didn't understand what autism was.
CHARLIE BESWICK:I didn't want my child to go to special school with all these special
CHARLIE BESWICK:needs kids that I had no idea about.
CHARLIE BESWICK:And I remember taking him when he was only three to look at one and
CHARLIE BESWICK:it wasn't the right one for him.
CHARLIE BESWICK:There was a lot of physical disabilities there and Harry has
CHARLIE BESWICK:no physical disabilities at all.
CHARLIE BESWICK:And I remember clutching him to her chest and sobbing and
CHARLIE BESWICK:just saying, "I'm so sorry.
CHARLIE BESWICK:I'm so sorry."
CHARLIE BESWICK:And I think I was apologising for the fact that these were his options.
CHARLIE BESWICK:Oliver was off to mainstream and this was what Harry had got.
CHARLIE BESWICK:You know, we'd gone around a school, which is amazing that the school that
CHARLIE BESWICK:we were in, but they were doing a lot of physical therapy on children
CHARLIE BESWICK:that were moaning and groaning and...
CHARLIE BESWICK:and I just felt like, again, I'd failed him and let him down.
CHARLIE BESWICK:And then we went to a second school in the same day, and I was emotionally spent.
CHARLIE BESWICK:I was really shattered.
CHARLIE BESWICK:And we were walking around the classrooms and looking through the windows, and
CHARLIE BESWICK:I was seeing these children happy, playing, laughing, smiling, thriving.
CHARLIE BESWICK:And I got emotional.
CHARLIE BESWICK:And the head teacher obviously mistook that for, for sadness.
CHARLIE BESWICK:And she put hand on my shoulder and she said, " I know parents don't ever want to
CHARLIE BESWICK:send their children to schools like this, but I promise we'll look after your boy."
CHARLIE BESWICK:And I just thought, "He's here.
CHARLIE BESWICK:This
VIKKI:yeah, yeah, this is right.
VIKKI:This
CHARLIE BESWICK:This is the right place for my boy.
CHARLIE BESWICK:And it was, and I never looked back.
CHARLIE BESWICK:You know, they were amazing for him.
CHARLIE BESWICK:Um, and in many ways, you know, his autism saves him from so much - the
CHARLIE BESWICK:judgment of the Goldenhar and the cruel comments that he's had to endure.
CHARLIE BESWICK:The autism has been a blessing in many ways.
CHARLIE BESWICK:So it's tough.
CHARLIE BESWICK:It is hard.
CHARLIE BESWICK:But it's like anything, there's two sides.
VIKKI:So this moves us beautifully onto where we can talk about your work
VIKKI:and how you are actually using all of those experiences and your greater
VIKKI:understanding of Goldenhar to, educate families and to educate other, children.
VIKKI:But before we do that, can I just find out what was the turning
VIKKI:point for you in terms of getting help for you and your recovery?
CHARLIE BESWICK:Uh, planning to take my life.
CHARLIE BESWICK:So I'd been in a car accident and I'd got some very, very strong painkillers
CHARLIE BESWICK:left over from the car accident.
CHARLIE BESWICK:And I got a very, very comprehensive plan on how to end
CHARLIE BESWICK:my life and what to do about it.
CHARLIE BESWICK:And my mum rang me on the evening and she just said, "Are you okay?"
CHARLIE BESWICK:And it was just one of those moments when I could have said, "Yeah, I'm fine.
CHARLIE BESWICK:See you tomorrow.
CHARLIE BESWICK:I love you.
CHARLIE BESWICK:Remember I love you."
CHARLIE BESWICK:And I didn't.
CHARLIE BESWICK:I just said, "No."
CHARLIE BESWICK:And she came straight round and stayed with me the night, and then
CHARLIE BESWICK:took me, literally dragged me to the doctors to say, you know, "My
CHARLIE BESWICK:daughter needs saving from herself."
CHARLIE BESWICK:And then I went on medication and I was so ashamed, so ashamed to be medicated.
CHARLIE BESWICK:And yet it saved my life.
CHARLIE BESWICK:And I'm currently medicated, actually, I, I was on antidepressant.
CHARLIE BESWICK:Yeah, I have no, no fear of it at all.
CHARLIE BESWICK:Um, I was medicated for only two and a half years.
CHARLIE BESWICK:I was on antidepressants.
CHARLIE BESWICK:And then three years ago I was put on anxiety medication for different reasons,
CHARLIE BESWICK:but I have no shame around that at all.
CHARLIE BESWICK:But back then I was really ashamed I couldn't just cope with it on my own.
CHARLIE BESWICK:And I think I expected jazz hands and cartwheels.
CHARLIE BESWICK:And actually the medication just leveled me out to a place
CHARLIE BESWICK:where I wasn't manic anymore.
CHARLIE BESWICK:And I didn't fear how I was going to wake up the next morning.
CHARLIE BESWICK:I just woke up feeling calm and level.
CHARLIE BESWICK:And from there, that gave me the grounding that I then went on to
CHARLIE BESWICK:have private counselling and with the antidepressants and just taking one
CHARLIE BESWICK:day at a time that made the difference.
VIKKI:Yeah.
VIKKI:Yeah.
VIKKI:And how long would you say your recovery took?
CHARLIE BESWICK:After that point from being medicated?
VIKKI:Yeah.
VIKKI:Or from your absolute nadir, that moment- like when did you
VIKKI:feel like you turned a corner?
CHARLIE BESWICK:That's such a good question.
CHARLIE BESWICK:So probably, probably three years.
CHARLIE BESWICK:So probably when my boys were about nine that I actually felt that
CHARLIE BESWICK:I was maybe 10, that I actually felt that I was getting somewhere.
CHARLIE BESWICK:I'd had a health scare and I decided to reduce my hours to part-time.
CHARLIE BESWICK:And I think at that point I was making logical, sensible decisions
CHARLIE BESWICK:for myself as a mum and as a teacher.
CHARLIE BESWICK:Whereas before then I'd almost been punishing myself to
CHARLIE BESWICK:be everything to everybody.
CHARLIE BESWICK:It was almost like my, you know, my penance really for failing my children.
CHARLIE BESWICK:You have to be everything to everybody.
CHARLIE BESWICK:You have to be superwoman.
CHARLIE BESWICK:You've got such a lot to make up for.
CHARLIE BESWICK:And I think the minute I started to be kinder to myself and.
CHARLIE BESWICK:Yeah, you've mentioned self-compassion.
CHARLIE BESWICK:The minute I started to be more compassionate to myself is the point I
CHARLIE BESWICK:think that turned things around for me.
VIKKI:And for any mums or dads that are listening who are really struggling,
VIKKI:they're in that sort of pit at the moment and finding it very hard to...
VIKKI:they're just trying to power on through and not giving any regard
VIKKI:to what they themselves need or what they're going through.
VIKKI:Do you have a message to them?
CHARLIE BESWICK:Self-awareness is so critical, but you,
CHARLIE BESWICK:we don't always have it.
CHARLIE BESWICK:So I would just be stopping and looking back on your day and
CHARLIE BESWICK:thinking "The decisions I've made today, how have they served me and
CHARLIE BESWICK:how have they served my children?"
CHARLIE BESWICK:Because the scare that came for me was a suspected stroke when I was only 32.
CHARLIE BESWICK:Uh, no, I was older than that.
CHARLIE BESWICK:Sorry.
CHARLIE BESWICK:I was 34.
CHARLIE BESWICK:And it was just incredibly high blood pressure from the stress of life.
CHARLIE BESWICK:But at that point, I was like, "If I die, what happens to the boys?
CHARLIE BESWICK:Who cares for the boys?
CHARLIE BESWICK:What happens to them?
CHARLIE BESWICK:I can't die."
CHARLIE BESWICK:And so the question is, you know, when we are pushing ourselves and punishing
CHARLIE BESWICK:ourselves in the way that I did, we're actually punishing our kids because we're
CHARLIE BESWICK:giving them half a version of who we are.
CHARLIE BESWICK:And, and that's not fair to them.
CHARLIE BESWICK:So if you won't do it for yourself, do it for them.
CHARLIE BESWICK:You know, slow down and just be a little bit kinder to yourself.
CHARLIE BESWICK:And we also model to our children how to cope in these situations.
CHARLIE BESWICK:So when I was beating myself up and being mean, you know, I could look
CHARLIE BESWICK:back and think, "Well, actually I'm showing Oliver how you treat yourself
CHARLIE BESWICK:in times of struggle and challenge."
CHARLIE BESWICK:And that's not what I want for him.
CHARLIE BESWICK:So children learn by watching.
CHARLIE BESWICK:They copy what we do, not what we say.
CHARLIE BESWICK:And so there is a responsibility on our shoulders as parents to be
CHARLIE BESWICK:you know, sort of happy, healthy human beings so that they can see
CHARLIE BESWICK:-our children can see how to live.
VIKKI:That's a beautiful segue into the work that you're doing now to
VIKKI:increase understanding and awareness.
VIKKI:Can you tell us about your organisation and the work that you do?
CHARLIE BESWICK:Sure.
CHARLIE BESWICK:So we've got the charity.
CHARLIE BESWICK:So with the charity, I go into schools and I run an assembly, in which I introduce
CHARLIE BESWICK:them to Harry, via the power of YouTube.
CHARLIE BESWICK:And we do some workshops around writing to Harry, the younger
CHARLIE BESWICK:children, and the older ones write to trolls online, on the internet.
CHARLIE BESWICK:The feedback that I get from parents is just incredible.
CHARLIE BESWICK:It lights me up, the charity work, you know, they'll come home and they'll
CHARLIE BESWICK:say, "I can't get a grunt out of my children at the best of times," you know,
CHARLIE BESWICK:"What have you done at school today?
CHARLIE BESWICK:Nothing."
CHARLIE BESWICK:And mums will say, "they come back and they're telling
CHARLIE BESWICK:me about Goldenhar Syndrome.
CHARLIE BESWICK:And they're telling me all about the abuse that you've had and how they're
CHARLIE BESWICK:in 'Harry's Army', and it's not a fighting army, it's a kindness army.
CHARLIE BESWICK:And they know what to do when they see somebody that looks different now."
CHARLIE BESWICK:And that's just amazing.
CHARLIE BESWICK:So that's really supporting the children and the next generation for when I'm not
CHARLIE BESWICK:around to be here and to be Harry's voice.
CHARLIE BESWICK:And then with the mums, that's very much around giving them a safe
CHARLIE BESWICK:space to work through that grief and that guilt without judgment.
CHARLIE BESWICK:And really from a place of understanding, you know, not just a therapist that
CHARLIE BESWICK:has trained in grief, but somebody that's walked it and lived it.
CHARLIE BESWICK:And we work through various different aspects of life, such as,
CHARLIE BESWICK:losing your own identity, dealing with the loss of friendships.
CHARLIE BESWICK:Some friends can't cope when you have a child with additional
CHARLIE BESWICK:needs and you lose friendships.
CHARLIE BESWICK:Um, you know, the reaction to other people, what other people think when
CHARLIE BESWICK:you're in the middle of the supermarket and your child's having a meltdown
CHARLIE BESWICK:and kicking the crap out of you, and you've got people saying "Your child
CHARLIE BESWICK:needs a good slap", or they're just throwing looks at you and tutting-
CHARLIE BESWICK:that's hard for parents to deal with.
CHARLIE BESWICK:So we just address the issues that are pertinent for that mum so that she can
CHARLIE BESWICK:then live a life with calm and confidence and contentment rather than overwhelm.
VIKKI:And I think what you were saying there about grief, that's
VIKKI:quite a key element, isn't it?
VIKKI:Because you are grieving the birth, the family life that, you
VIKKI:know, everybody goes into it having expectations rightly or wrongly.
VIKKI:But yeah, I mean, did you feel you went through a grieving period?
CHARLIE BESWICK:Absolutely.
CHARLIE BESWICK:And I do still to this day at times.
CHARLIE BESWICK:You know, Oliver had a prom- Harry didn't.
CHARLIE BESWICK:Oliver has gone to college and is travelling to Japan
CHARLIE BESWICK:next year- Harry won't.
CHARLIE BESWICK:It never leaves, it never goes, but you just become more adjusted to it
CHARLIE BESWICK:and life grows around your grief and you see the gifts that your child has,
CHARLIE BESWICK:which offsets the grief, you see that they're having, they're living the
CHARLIE BESWICK:best life for them and They're happy.
CHARLIE BESWICK:And ultimately that's all we want as parents is for our children to be happy.
CHARLIE BESWICK:So you, you do see that, but I think, yes, the grief never leaves.
CHARLIE BESWICK:And I have been sort of slammed on social media at times for saying
CHARLIE BESWICK:things like this, because they'll say, "Well, how will your children feel
CHARLIE BESWICK:if they see that you are saying you grieved them and that you, you grieve?
CHARLIE BESWICK:And I'll say, yeah, but you can, I can feel sorrow and pride at the same time.
CHARLIE BESWICK:can know grief and love simultaneously.
CHARLIE BESWICK:Those two things aren't mutually exclusive.
CHARLIE BESWICK:You know, I can grieve the experiences Harry will never know and yet be
CHARLIE BESWICK:completely thrilled that he's off on a three day residential with school.
CHARLIE BESWICK:I can do both things and it's not that I grieve for Harry.
CHARLIE BESWICK:I'm so proud of him.
CHARLIE BESWICK:I'm so proud of the mum that he's made of me, of the broken
CHARLIE BESWICK:bits of the woman that I was.
CHARLIE BESWICK:Harry and Oliver have made me who I am today and I'm just so grateful
CHARLIE BESWICK:and so proud of them for that.
CHARLIE BESWICK:But damn right, it's a grief, you know?
CHARLIE BESWICK:And I would argue with anybody that says it isn't.
CHARLIE BESWICK:It's definitely a grief and it's a pain and we live with
CHARLIE BESWICK:that and we work through it.
VIKKI:And that's not negating Oli and Harry in any way.
CHARLIE BESWICK:No,
VIKKI:It's the situation.
VIKKI:not.
VIKKI:Not, Not, them.
VIKKI:So what sort of relationship do the boys have?
CHARLIE BESWICK:So the first five years I think they coexisted.
CHARLIE BESWICK:And then Oliver became more aware of people being mean about his brother.
CHARLIE BESWICK:And so he then became his big protector and defender.
CHARLIE BESWICK:And so that went on probably about another five or six years.
CHARLIE BESWICK:And then Oliver got to the age of about 13, 14.
CHARLIE BESWICK:And we were at the stage where we would go out and do things that teenagers
CHARLIE BESWICK:want to do, but we'd have to come home early because Harry would have a
CHARLIE BESWICK:meltdown or he couldn't cope with it.
CHARLIE BESWICK:And so I think Oliver's had periods of resentment as well.
CHARLIE BESWICK:So he loves him fiercely, he protects him massively, but I also think he
CHARLIE BESWICK:knows he's had to come second place such a lot, you know, so many times.
CHARLIE BESWICK:And there have definitely been periods of resentment.
CHARLIE BESWICK:He's kind of had, I say the worst of both worlds, but he's not been
CHARLIE BESWICK:an only child because he's not sort of had us to to himself, but he's
CHARLIE BESWICK:not had a sibling, he's not had Harry to partner with and play with.
CHARLIE BESWICK:And I remember him being about seven and coming home from primary school
CHARLIE BESWICK:and getting upset and he said, "Mum, some of the boys at school were
CHARLIE BESWICK:saying that they'd been falling out with their brothers at school.
CHARLIE BESWICK:And they don't know how lucky they are.
CHARLIE BESWICK:I wish I could have an argument with Harry.
CHARLIE BESWICK:They're so lucky to have brothers to fall out with or fight
CHARLIE BESWICK:with and I don't have that."
CHARLIE BESWICK:You know?
CHARLIE BESWICK:Just little things like that.
CHARLIE BESWICK:I think it's been a real journey for Oliver.
CHARLIE BESWICK:I often say that the siblings of children like Harry are the
CHARLIE BESWICK:unsung heroes of our stories.
CHARLIE BESWICK:And I will tell you at a story really quickly, and I were pressed for time,
CHARLIE BESWICK:but there was one time when Oliver was about four, four and a half, five, and
CHARLIE BESWICK:he was questioning God for some reason.
CHARLIE BESWICK:And we were at home and Harry'd had a real meltdown.
CHARLIE BESWICK:And he said to me, he was talking to me about why- "Why did God send Harry to us?
CHARLIE BESWICK:Why couldn't he send him to somebody else?"
CHARLIE BESWICK:And I said, I don't know.
CHARLIE BESWICK:They obviously, God obviously chose us for a reason."
CHARLIE BESWICK:And he said, Mummy, you always say Harry's special, but you don't say I'm special.
CHARLIE BESWICK:Why aren't I special?"
CHARLIE BESWICK:And in that moment I just thought, "Crikey, I say 'special' meaning
CHARLIE BESWICK:disabled, different, disfigured.
CHARLIE BESWICK:I don't say special meaning unique and better than you", you know?
CHARLIE BESWICK:But Oliver had heard it that way because he was four and four year olds do.
CHARLIE BESWICK:And I said, "Oliver, you are special as well.
CHARLIE BESWICK:When God sent Harry to me, he knew that I was going to have times when I
CHARLIE BESWICK:found it really hard and really tough.
CHARLIE BESWICK:So God sent you to me so that on the days when I felt that I was a bad mum,
CHARLIE BESWICK:I could look at you and realise that I am a good mum and that I can do things
CHARLIE BESWICK:right and you are my gift from God."
CHARLIE BESWICK:And so I said to him, "You are the greatest thing I ever did."
CHARLIE BESWICK:And to this day, even now, he's almost 17.
CHARLIE BESWICK:him, If I text him and say, "Oli, what you?"
CHARLIE BESWICK:He'll say "The greatest thing you ever did."
VIKKI:Aww!
VIKKI:My goodness!
CHARLIE BESWICK:And that stayed with us, you know?
CHARLIE BESWICK:And Harry is my sunshine boy.
CHARLIE BESWICK:I sing 'You Are My Sunshine' and he sings it back to me.
CHARLIE BESWICK:And he taught himself how to play the piano when he was two and a half.
CHARLIE BESWICK:And he plays, 'You Are My Sunshine for me, you know?
CHARLIE BESWICK:Andrew and I get married in April, and Harry's playing at the wedding for us.
VIKKI:My goodness, that's amazing!
CHARLIE BESWICK:It'll be some sort of 'Twinkle Twinkle/ Old
CHARLIE BESWICK:MacDonald' mashup, but we don't care.
CHARLIE BESWICK:We're not, we're not remotely bothered.
CHARLIE BESWICK:We just love that he's taking part.
CHARLIE BESWICK:So yeah, he's my 'Sunshine Boy' and Oliver's without doubt the
CHARLIE BESWICK:greatest thing I ever did.
CHARLIE BESWICK:And when I wrote and published my book, a lot of his teachers read
CHARLIE BESWICK:it and they just said, "We had no idea what he puts up with at home."
CHARLIE BESWICK:So yeah, I want to give a massive shout out to all the siblings because,
CHARLIE BESWICK:you know, as you know personally, yeah, you put up with a lot.
VIKKI:Aw, well, both your boys sound incredible.
VIKKI:And so how is Harry these days and how's your relationship with Harry?
CHARLIE BESWICK:Yeah, great.
CHARLIE BESWICK:He is a feisty teenager with a mind of his own, um, functioning around
CHARLIE BESWICK:about six years old, just becoming a little bit more independent.
CHARLIE BESWICK:Swearing like a sailor at times.
CHARLIE BESWICK:That's one of those, when your son says, you know, "F's sake" on a Monday
CHARLIE BESWICK:morning, you kind of dunno that to tell him off or congratulating him
CHARLIE BESWICK:for using it in the right context.
CHARLIE BESWICK:So there's always that a battle.
CHARLIE BESWICK:But yeah, they're amazing boys.
CHARLIE BESWICK:Oliver has taught himself Japanese.
CHARLIE BESWICK:Oliver is dyslexic and also autistic, we've realised recently.
CHARLIE BESWICK:But he's fluent in Japanese.
CHARLIE BESWICK:He's Amazing.
CHARLIE BESWICK:Amazing.
CHARLIE BESWICK:Uh, and we've got Harry, who is so gifted with his music.
CHARLIE BESWICK:He's played as part of the police orchestra, in Birmingham.
CHARLIE BESWICK:They're just incredible boys.
CHARLIE BESWICK:They're amazing boys.
CHARLIE BESWICK:I'm so, so proud of them.
VIKKI:How do you feel about Oli going to Japan?
VIKKI:That's
CHARLIE BESWICK:Yeah,
VIKKI:adventure.
VIKKI:Hard for you as mum though!
CHARLIE BESWICK:He is.
CHARLIE BESWICK:Yeah.
CHARLIE BESWICK:No good.
CHARLIE BESWICK:He's going out there for one month with his stepbrother and stepsister, so the
CHARLIE BESWICK:three of them are going out together.
CHARLIE BESWICK:And I think it will be an adventure of a lifetime for him.
CHARLIE BESWICK:I really hope that it shapes him.
CHARLIE BESWICK:I try very hard to encourage him to get out of our postcode area.
CHARLIE BESWICK:His dad and his dad's family have set up a very successful business, but
CHARLIE BESWICK:it's based where we are and I would really love him to spread his wings.
CHARLIE BESWICK:And so I've always, since he was very little, since Oliver was
CHARLIE BESWICK:about three, if ever we've had time on our own, I've taken him away.
CHARLIE BESWICK:So we've been to Manchester, we've been to Liverpool.
CHARLIE BESWICK:We've been to London several times.
CHARLIE BESWICK:When he was 11, he became obsessed with the Colosseum.
CHARLIE BESWICK:Um, so I saved 60 pounds a month.
CHARLIE BESWICK:And for his 13th birthday, we went to Rome for four days.
VIKKI:Oh amazing!
CHARLIE BESWICK:As a surprise, you know, so I, I just try and make sure
CHARLIE BESWICK:that he sees a little bit of the world, and just then can make his own decision.
CHARLIE BESWICK:If he chooses to stay local, then that's fine, but it won't
CHARLIE BESWICK:be because I've kept him here.
CHARLIE BESWICK:It will be because I've encouraged him to go.
CHARLIE BESWICK:I don't want him to, for me -selfish reasons, I'd keep him with me forever!
CHARLIE BESWICK:But for him, I want him to see the world, you know, because he
CHARLIE BESWICK:can achieve whatever he wants to.
VIKKI:Oh, so it sounds like things are are good.
VIKKI:You're in a good place
CHARLIE BESWICK:Yes.
VIKKI:You're getting married!
CHARLIE BESWICK:It's all good.
CHARLIE BESWICK:Yeah.
CHARLIE BESWICK:Andrew and I have been together almost 11 years now.
CHARLIE BESWICK:It will have been 11 years on the day that we get married.
CHARLIE BESWICK:And he's an amazing stepdad to both of my boys.
CHARLIE BESWICK:My boys absolutely adore him.
CHARLIE BESWICK:So, yeah, we are in an amazing place.
CHARLIE BESWICK:I always say Tales With A Twist can have a happy ending,
CHARLIE BESWICK:and we are in that place now.
CHARLIE BESWICK:So it's, it's, it's good.
CHARLIE BESWICK:It's been hard, it's been dark.
CHARLIE BESWICK:It's been a struggle.
CHARLIE BESWICK:But we're in a good place now.
VIKKI:And would you say any regrets about all of the trauma
VIKKI:that you've been through?
VIKKI:I mean, do you feel you've benefited in any way from all of that?
CHARLIE BESWICK:Completely.
CHARLIE BESWICK:Yeah, I do.
CHARLIE BESWICK:I think it shaped who I am.
CHARLIE BESWICK:I think in not so much regrets, but it just makes me sad that I
CHARLIE BESWICK:was so mean to myself for so long, and that's what definitely drives
CHARLIE BESWICK:me to support other mums now.
CHARLIE BESWICK:I don't want other mums to be six years in, wanting to take their own life
CHARLIE BESWICK:before they realise that the only way they can fail is to blame themselves for
CHARLIE BESWICK:something that was never their fault.
VIKKI:No, exactly.
VIKKI:And that's easy for us to say now, looking objectively, but
VIKKI:when you're going through it,
CHARLIE BESWICK:yeah.
VIKKI:you don't have that clear thinking.
CHARLIE BESWICK:But I am speaking with mums now that really appreciate talking
CHARLIE BESWICK:to somebody who felt like that as well.
CHARLIE BESWICK:And again, sitting and giving them that space to talk about what they're grieving.
CHARLIE BESWICK:Let's list what you are grieving, let's list what you'll never know,
CHARLIE BESWICK:let's list what you think your child will never experience.
CHARLIE BESWICK:And they might, you know, in some guise or another they may, but it's
CHARLIE BESWICK:really important that we validate that loss, right at the beginning, and then
CHARLIE BESWICK:we can move through everything else.
VIKKI:So Charlie, you mentioned that you'd written a book.
VIKKI:Can you tell me a bit more about that?
CHARLIE BESWICK:Yes, so it's called 'Our Altered Life', same as our social media.
CHARLIE BESWICK:And it's very much the book I needed to read right at
CHARLIE BESWICK:the beginning of the journey.
CHARLIE BESWICK:So everybody that reads it says it made them cry.
CHARLIE BESWICK:It also made them laugh out loud so you know, it chronicles
CHARLIE BESWICK:the highs and the lows.
CHARLIE BESWICK:And for me it was really important to be brutally honest and to not
CHARLIE BESWICK:skirt around any of the issues that I knew needed addressing early on.
CHARLIE BESWICK:So it's been read internationally.
CHARLIE BESWICK:There's loads of great reviews, so you can buy that on Amazon and hopefully
CHARLIE BESWICK:people will get a lot from that.
CHARLIE BESWICK:Lots of Mums have reached out and said, "You've written what I daren't say."
CHARLIE BESWICK:So in that instance, it's a great introduction to me and my boys.
VIKKI:And did you find it cathartic then?
CHARLIE BESWICK:Yeah, very much so.
CHARLIE BESWICK:Initially it was just gonna be something I did for myself and it took me nine years.
CHARLIE BESWICK:I just wrote bits, left it, wrote bits, left it, and then had a couple
CHARLIE BESWICK:of friends read it and they just went, "You so need to publish this.
CHARLIE BESWICK:It absolutely needs to be a book."
CHARLIE BESWICK:And so I did, not really expecting much and - behind my boys- I
CHARLIE BESWICK:would say my greatest achievement.
VIKKI:How do people get hold of you, if they're looking for support either
VIKKI:for themselves or for loved ones.
CHARLIE BESWICK:So we are all over social media as Our Altered Life,
CHARLIE BESWICK:and if people want to email me, they can do so at 'info@ouralteredlife'.
CHARLIE BESWICK:I do have a newsletter that I'd encourage people to subscribe to
CHARLIE BESWICK:if they're a mum in this position.
CHARLIE BESWICK:And it is very specifically written for mums like me.
CHARLIE BESWICK:But they can access that by emailing me or they can find the link on
CHARLIE BESWICK:Instagram, under Our Altered Life.
VIKKI:My brother's disabled as well, and I remember my mum saying that she
VIKKI:found it very, very hard being amongst other mums because, you know, her
VIKKI:baby wasn't a pretty baby and he was having very different experiences or
VIKKI:delayed development compared to others.
VIKKI:And I think for a lot of mums who do have healthy babies, they probably,
VIKKI:again, feel guilty if their friend or somebody that they know isn't having
VIKKI:the same experience or perhaps they feel awkward about how to respond, how to
VIKKI:react to the baby who might have, you know, disfigurement or disabilities.
VIKKI:What advice would you give to them about the best way to help or respond?
CHARLIE BESWICK:I think two things.
CHARLIE BESWICK:I think, you know, sort of name the elephant in the room, first of all.
CHARLIE BESWICK:If somebody come to me and said, "Charlie, I've never had a baby or known a baby
CHARLIE BESWICK:with a disfigurement, and I might say the wrong thing, but I'd love to know a bit
CHARLIE BESWICK:more about what you're going through", I'd have been so grateful and so touched.
CHARLIE BESWICK:And on a similar vein, I would say be interested over
CHARLIE BESWICK:interesting, particularly new mums.
CHARLIE BESWICK:I think we're all so proud of, of babies and we're all so keen to say
CHARLIE BESWICK:"Mine's walking, mine's talking, mine's doing this, mine's doing that."
CHARLIE BESWICK:We're so desperate to share and we're not asking questions.
CHARLIE BESWICK:We are sort of giving information.
CHARLIE BESWICK:So I think just be interested in each other's babies, and, and don't have
CHARLIE BESWICK:that judgement of "Ooh, not walking yet?
CHARLIE BESWICK:Is something wrong?"
CHARLIE BESWICK:You know, asking those questions.
CHARLIE BESWICK:I would name the elephant in the room and just ask lots of questions.
CHARLIE BESWICK:And include parents, you know, I know parents like myself, our children
CHARLIE BESWICK:often don't get invites to parties.
CHARLIE BESWICK:They don't get included in things like that.
CHARLIE BESWICK:And I would just say, give us the opportunity to say yes or no.
CHARLIE BESWICK:You know, don't just assume or feel awkward that they can't join in.
CHARLIE BESWICK:Let us be the one that decides that.
CHARLIE BESWICK:Just include us and wrap your arms around us in the same way
CHARLIE BESWICK:that you would any other mum.
VIKKI:Yeah, all of what you're saying is such incredible advice and there is
VIKKI:that awkwardness and not wanting to say the wrong thing or do the wrong thing.
VIKKI:So there's an avoidance.
VIKKI:These are really helpful, practical tips.
VIKKI:So thank you.
VIKKI:And I, can't wait for my mom to listen to this episode cause I
VIKKI:think, I think it's gonna resonate with her so hugely - obviously
VIKKI:very, very different circumstances.
VIKKI:But I think a lot of the feelings that you have touched upon today,
VIKKI:will be things that she can very much relate to having gone through.
VIKKI:So thank you.
VIKKI:Been such an inspirational guest and you're such a joy to speak to and
VIKKI:I'm absolutely keeping everything crossed for your wedding to go ahead.
VIKKI:No covid, no pandemic affecting it.
VIKKI:And uh, yeah, I can't wait to hear about Harry's rendition
VIKKI:as you stroll down the aisle.
VIKKI:That sounds like a wonderful thing.
CHARLIE BESWICK:Place your bets now, it'll be Old MacDonald or something
CHARLIE BESWICK:random, but we don't even care!
VIKKI:Yeah, exactly!
VIKKI:Thank you so much for joining us today.
CHARLIE BESWICK:Thank you Vikki.
VIKKI:If you've enjoyed this episode of Blue MumDays, please like and subscribe.
VIKKI:It really does make the difference in helping other people find it and
VIKKI:that means helping more parents.