He is using everything he can to communicate. I that it is one of his strongest skills at this point. -Sanath Ramesh. 

Raising a child with a rare disease means that everything is just a little bit harder. There are no simple trips to the doctor. Any trip in the car requires lifting this growing boy into his seat, and he cannot even help. 

In this episode Sanath paints a vivid picture of what this means for Ramya and him. He also reports that Raghav is developing communication skills. Given his condition, this means that his family needs to learn what he is trying to tell them. We hope you enjoy hearing about this very important aspect of their life.

Raising Rare needs your support. 

If your company is interested, please contact us at sponsorship@raisingrare.fm 

If you would like to personally donate, please visit https://cureGPX4.org/donate 

Music: Jacob Tompkins (losstudiosnc@gmail.com)

Graphic Design: Ramya Ramaswamy (ramya@curegpx4.org)