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Raising Rare - Raising Rare EPISODE 4, 27th February 2021
More Than You Can Handle (Part 1)

More Than You Can Handle (Part 1)

We have all heard the inspiring stories of a family that suddenly faces the trauma of a rare diagnosis, become advocates for themselves or their child, finds a solution, and celebrate the triumph. This one is different. 

Miguel Sancho and his wife Felicia Morton were that family. They became advocates and went on a wild medical adventure. And today, they can celebrate the triumph. However, they have decided to share the harder part of their journey.  

Miguel has written an enthralling book entitled More Than You Can Handle: A Rare Disease, A Family in Crisis, and the Cutting-Edge Medicine That Cured the Incurable.   It is the story of a family straining under the weight of their son’s diagnosis of chronic granulomatous disease (CGD).  Written in the first-person, Miguel shares his deepest thoughts, fears, and vulnerabilities. He relates the mistakes he made along the way and how he has come to grips with them. 

It was wonderful to have Felicia give her angle on some of the stories too. Felicia has used the experience and started a nonprofit CGD Association of America. CGDAA is committed to advocating on behalf of patients, carriers, and families by providing clear, accurate, and independent news and information about CGD and advancing CGD research.

During the interview, Miguel and Sanath connect in a way that only rare dads can. Sanath is at one end of the tunnel, filled with little more than hope and drive. Miguel is at the other end of that tunnel, able to provide encouragement and speak of hopes fulfilled. 

We highly recommend Miguel’s book.  It is extremely well written and the story teaches some important lessons.  It will be available starting March 2. You can order it on amazon. More Than You Can Handle