Interview with Alexandra Wosleger (Mother of 3) Discusses the WWOX GENE

summary

In this conversation, Alex Wosleger shares her journey as a parent of two children with a rare genetic disorder, discussing the challenges, triumphs, and the importance of community support. She reflects on the diagnosis journey, the impact of diet and therapy, and the dynamics of parenting in the face of adversity. Alex emphasizes the beauty of her children's progress and the lessons they teach her, while also touching on the hope brought by advancements in gene therapy.

takeaways

Parenting children with special needs is a unique journey.
The diagnosis process can be long and challenging.
Genetic disorders can significantly impact development.
Nutrition plays a crucial role in managing health.
Therapies should be enjoyable and engaging for children.
Every child develops at their own pace, regardless of challenges.
Community support is vital for families with special needs.
Finding joy in small milestones is essential.
Gene therapy offers hope for children with rare disorders.
Parenting requires constant adaptation and learning.

titles

Navigating Parenthood with Special Needs
The Journey of a Special Needs Parent

Sound Bites

"It's been a huge journey for us."
"We're just gonna live."
"It's been a lot to process."

Chapters