Artwork for podcast Eczema Breakthroughs
Where do you turn to when you’re at the end of your rope? Mentorship and support for eczema parents
Episode 1716th February 2022 • Eczema Breakthroughs • Global Parents for Eczema Research (GPER)
00:00:00 00:19:01

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Studies by Global Parents for Eczema Research have shed light on the many mental health, quality of life, and life course impacts experienced by parents who care for children with moderate to severe eczema. The impacts are often hidden from view and take an enormous toll on caregivers who have the daunting challenge of controlling and managing eczema at all hours of the day and night, often without a break. Healthcare systems usually aren’t set up to address the needs of parents of children with serious medical issues. As a result, parents and caregivers are on their own, stressed, isolated, and without support. In this episode we discuss this common experience with several parents who are part of GPER’s Support for Eczema Caregivers Program, which was launched in 2020 to provide mentoring and listening support to parents and caregivers struggling with the many hidden challenges of living with eczema. For more about this program go to: www.parentsforeczemaresearch.com/caregiver

Research in this episode:

Insights From Caregivers on the Impact of Pediatric Atopic Dermatitis on Families: “I’m Tired, Overwhelmed, and Feel Like I’m Failing as a Mother”

Impact of Childhood Atopic Dermatitis on Life Decisions for Caregivers and Families