{"href":"http://player.captivate.fm/services/oembed?url=http%3A%2F%2Fplayer.captivate.fm%2Fepisode%2F1b6aa8b1-55ac-4009-901c-3393e40815df","version":"1.0","provider_name":"Captivate.FM","provider_url":"https://www.captivate.fm","width":600,"height":200,"type":"rich","html":"","title":"Kyle Bryant: Remember Why We Are Doing All This","description":"we welcome Kyle Bryant of the Friedreich\u2019s Ataxia Research Alliance (FARA) to discuss his journey as a patient with Friedreich\u2019s Ataxia (FA), as an active patient leader, and in his job as a liaison between the FA community and researchers.\nAfter being diagnosed with FA when only 17 years old, Kyle has dedicated his life to helping other people with FA and exemplifying the adage \u201cLife is how we react to it!\u201d He has reacted by becoming a long-distance bike rider, podcast host, author, and full-time patient advocate. \nKyle opens up about his drive to help others deal with the challenges of life with FA and other disorders. It started when he wrote a daily blog during his first big bike ride from San Diego to Memphis. The comments and responses to this blog made him realize \u201cOh my gosh, we can make a real impact\u201d by giving people hope and community. It was life-changing for him.\nKyle has a very healthy perspective on participation in clinical trials. He talks about his understanding that he may be just one small \u201cmouse\u201d in a study, but he can be the most powerful mouse that ever lived, an essential ingredient to make a drug a reality. \n\nKyle Bryant is the author of Shifting Into High Gear: One Man\u2019s Diagnosis and the Epic Bike Ride that Taught Him What Matters. He is also the co-host of The Two Disabled Dudes Podcast (@2DDPodcast) with his friend Sean Baumstark. He and Sean are featured in the award-winning documentary The Ataxian.","thumbnail_width":300,"thumbnail_height":300,"thumbnail_url":"https://artwork-mirror.captivate.fm/214f1ad0-99a5-4b64-87f0-cd475e90122f/Improbable-Developments-3.png"}