{"href":"http://player.captivate.fm/services/oembed?url=http%3A%2F%2Fplayer.captivate.fm%2Fepisode%2F6eaa2f15-7fff-4e16-a8ac-e613902ec9a1","version":"1.0","provider_name":"Captivate.FM","provider_url":"https://www.captivate.fm","width":600,"height":200,"type":"rich","html":"<iframe style=\"width: 100%; height: 200px;\" title=\"Managing the Day With a Child With a Rare Disease\" frameborder=\"0\" scrolling=\"no\" allow=\"clipboard-write\" seamless src=\"http://player.captivate.fm/episode/6eaa2f15-7fff-4e16-a8ac-e613902ec9a1\"></iframe>","title":"Managing the Day With a Child With a Rare Disease","description":"\u201cThis is a marathon. If we run a marathon like a sprint, we will be burnt out in the first mile.\u201d Sanath\n\nWhen Sanath and Ramya learned of Raghav\u2019s diagnosis, life became very busy. They found ways to organize and focus on their work to find a treatment and on their careers. They learned how to manage the stress.\n\n\u201cToo many things came at the same time. Sanath and I could not have a conversation about anything. We would talk two lines and then my mental capacity would be full. I can\u2019t hear anymore. I am not able to process this.\u201d Ramya\n\nIn this episode, we discuss some of their biggest fears and a few dreams they have for Raghav.\n\nMusic and Sound Design by Jacob Tompkins\nGraphics by Ramya Ramaswamy","thumbnail_width":300,"thumbnail_height":300,"thumbnail_url":"https://artwork.captivate.fm/114c3570-d7fd-4eda-abc1-ae10576d2204/RaisingRare_Logo-2-.png"}