{"href":"http://player.captivate.fm/services/oembed?url=http%3A%2F%2Fplayer.captivate.fm%2Fepisode%2Ffa0136f2-3f24-4c16-883b-ac87bc3d021f","version":"1.0","provider_name":"Captivate.FM","provider_url":"https://www.captivate.fm","width":600,"height":200,"type":"rich","html":"","title":"Meet Raghav's Mom","description":"\u201cThe name Raising Rare means a lot to me. It conveys exactly the journey we are on. It is very close to my heart and I wanted to do a logo. I wanted to show that there are three of us on this journey, the two of us and Raghav.\u201d Ramya (a.k.a. Raghav\u2019s Mom)\n\nSanath is not in this fight alone. He has a wonderful partner, his wife Ramya. In this episode we get to hear Ramya\u2019s story and how she is using her skills and strengths to generate awareness and resources. \n\nWe get a glimpse into why they are such good partners \u2013 they look at the situation differently. Sanath sees the community as a source of knowledge and diverse perspectives. Ramya sees the community they are building as a family, a source of shared support. She turns to the SSMD and hypotonia communities for ideas and information about managing everyday challenges. \n\nBoth Sanath and Ramya bring a relentless optimism and resilience to this fight. That spirit shines through in this discussion with the couple.","thumbnail_width":300,"thumbnail_height":300,"thumbnail_url":"https://artwork.captivate.fm/114c3570-d7fd-4eda-abc1-ae10576d2204/RaisingRare_Logo-2-.png"}