{"href":"http://player.captivate.fm/services/oembed?url=http%3A%2F%2Fplayer.captivate.fm%2Fepisode%2Ffcbe2aca-069c-4497-8b4e-7ca18109ccca","version":"1.0","provider_name":"Captivate.FM","provider_url":"https://www.captivate.fm","width":600,"height":200,"type":"rich","html":"<iframe style=\"width: 100%; height: 200px;\" title=\"Shironda, Kendra and Jeff on Surviving Lupus: Kidney Failure, Flare-Ups and Diagnosis\" frameborder=\"0\" scrolling=\"no\" allow=\"clipboard-write\" seamless src=\"http://player.captivate.fm/episode/fcbe2aca-069c-4497-8b4e-7ca18109ccca\"></iframe>","title":"Shironda, Kendra and Jeff on Surviving Lupus: Kidney Failure, Flare-Ups and Diagnosis","description":"Shironda, Kendra and Jeff live with lupus. Christie of the Lupus Foundation of America joins them.\nTogether they explain why the invisible illness takes years to diagnose.\n\nShironda, Kendra, Jeff and Christie of the Lupus Foundation of America in Dallas sit down to talk about lupus. The host notes that lupus gets overlooked and mentions T-Boz of TLC being hospitalized. Shironda describes SLE, stage three kidney disease, inflammation and flare-ups set off by the sun. Jeff explains he was diagnosed in South Korea in 2016 after symptoms began in 2010. Kendra recounts nonstop fevers after a vacation, a Christmas 2024 ER visit, failing organs, and New Year's at Baylor. An ice storm delayed her diagnosis. Christie says 90% of lupus warriors are women, many of them African American, and that diagnosis takes about six years on average. The panel covers hair loss, Shironda's blurry vision on the freeway, gaslighting by doctors, specialists, medication, yoga, dialysis, alcohol and fatigue. They discuss Lupus Awareness Month and name celebrities including Toni Braxton, Nick Cannon, Selena Gomez and Trick Daddy. Christie describes the Lupus and You conference, the Dallas Walk to End Lupus at Clyde Warren Park, and promising clinical trials. The panel also talks about family support, Kendra's strained relationship, and Shironda's emotional first lupus conference. Work and insurance come up, including Shironda's team at Radio One. The conversation closes with pregnancy, disability, FMLA and ADA protections, and Jeff's Men Versus Lupus support group.\n\nCHAPTERS\n0:00 - Intro\n1:00 - Meet Shironda, Kendra, Christie and Jeff\n2:33 - Why Lupus Gets Overlooked and T-Boz\n3:36 - Shironda's SLE and Kidney Disease\n6:08 - Lupus Flare-Ups and the Sun\n8:12 - Jeff Diagnosed With Lupus in South Korea\n10:46 - Kendra's Super Flare and Christmas Hospitalization\n13:23 - Is Lupus Hereditary\n14:57 - Lupus in African American Women\n15:57 - Why Lupus Takes Six Years to Diagnose\n16:28 - Early Signs: Inflammation and Hair Loss\n17:30 - Shironda's Blurry Vision on the Freeway\n19:32 - Lupus Stigma and Invisible Illness\n21:34 - Finding Doctors Who Listen\n23:08 - Rheumatologists and Lupus Specialists\n24:39 - What Lupus Medication Does\n25:09 - Exercise, Yoga and Avoiding the Sun\n26:39 - Dialysis, Diet and Alcohol With Lupus\n28:12 - Lupus Fatigue\n28:43 - Lupus Awareness Month and Celebrities\n30:47 - Dallas Walk to End Lupus Fundraising\n31:49 - Clinical Trials and Chemotherapy for Lupus\n33:50 - Family Support After a Diagnosis\n35:51 - Kendra on Lupus and Relationships\n37:57 - Jeff's Family and Friends Checking In\n38:30 - A Partner at Doctor Visits\n39:33 - How Loved Ones Can Help\n42:09 - Shironda's First Lupus Conference\n44:44 - A Whole Person, Not Lupus\n45:15 - Lupus at Work and Insurance\n48:21 - Pregnancy With Lupus\n48:53 - Disability, FMLA and ADA Protections\n50:25 - How to Support Lupus Warriors\n51:57 - Jeff's Men Versus Lupus Support Group\n54:00 - Where to Find the Panel\n\nWatch the full video: \n\nBecome a Patron - \nSubscribe on YouTube - \nSubscribe to our clips channel - \n\nWatch more exclusive series and footage from the Reallyfe Street Starz Network:\nReallyfe Street Starz Podcast - \nReallyfe Street Starz Clips - \nBlue Couch Performances - \nReallyfe Mic Drop - \n\n\ud83d\udd25 Support the movement:\n \ud83d\udecd\ufe0f Store \u279c \n\ud83c\udf10 Website \u279c \n\ud83d\udcf1 Follow:\n \ud83d\udcf8 Instagram \u279c @ReallyfeProductions\n \ud83d\udcf8 Instagram \u279c @ReallyfeStreetStarz\n \ud83c\udfb5 TikTok \u279c @reallyfestreetstarz\n \ud83d\udc26 Twitter/X \u279c @Reallyfe_214\n \ud83d\udcd8 Facebook \u279c Facebook.com/ReallyfeStreetStarz\n \u25b6\ufe0f YouTube \u279c \n\ud83d\udcb8 Cash App: $RealLyfeProductions\n#ReallyfeStreetStarz","thumbnail_width":300,"thumbnail_height":300,"thumbnail_url":"https://bot.5.78.199.238.sslip.io/podcast-art/f5f6f3254c811645ff377e79.jpg"}