What is Long COVID—and why does it persist for some people but not others? Why do symptoms vary so widely—from fatigue and brain fog to shortness of breath and heart palpitations? And how are clinicians and public health leaders working to better understand and support those affected?
In this episode of Patient Innovations, Rashmi and Mary kick off the new season diving into one of the most complex health challenges to emerge in recent years—Long COVID, a condition with no known standard of care and a growing need for awareness, research, and compassion.
Our guests bring deeply personal and professional perspectives to this evolving condition:
- Senator Lindsey Port, Minnesota State Senator, shares her lived experience navigating life, work, and treatment with Long COVID—and the struggles she’s faced with insurance coverage and care access.
- Dr. Ruby Tam, physician with the ME/CFS Clinic, runs a free clinic that offers a clinical perspective on what she’s seeing among patients, how her team helps them manage symptoms, and why treating Long COVID remains such a challenge.
- Kate Murray, from the Minnesota Department of Health, discusses one of the nation’s first statewide public health initiatives focused on Long COVID research and awareness—and the power of collaboration in driving progress.
Key Takeaways:
Long COVID is real—and it’s life-altering for many.
While symptoms vary, the most common include fatigue, brain fog, shortness of breath, and post-exertional malaise. For some, recovery is slow and unpredictable.
Be your own champion.
Patients often face skepticism or delayed diagnosis. Listen to your body, document your symptoms, and connect with clinicians who understand post-viral conditions. If one provider isn’t listening—find another, and then another.
Find your community.
Join care and support groups to learn, connect, and navigate insurance or access challenges. Long COVID remains widely misunderstood and under diagnosed—but community can help bridge those gaps.
Certain groups are more affected.
Women, Hispanic and Latino communities, older adults, and those with underlying health conditions are at higher risk. Stressful living conditions can also worsen symptoms, as stress often manifests as inflammation.
Innovation and collaboration are key.
Minnesota’s public health initiatives and clinical partnerships are leading the way in building awareness, research, and resources for those living with Long COVID. There’s a long road ahead, but progress is happening—join the movement and access available support.
Links & Resources:
#LongCOVID #PatientInnovations #HealthcareMN #PostCOVIDCare #PublicHealth #ChronicIllness #HealthEquity #PatientStories #HealthcareInnovation #Resilience
